A wise person once said: "A person stands tallest, when they stoop to help a child."
Association P.A.V.E.L., the Romanian organization of parents whose children have cancer, leukemia or grave anaemia recieves many appeals sent by families with a ill child. They need desperately help in order to save their child.
Some need special operations, others – better treatments or investigations, which can be done sometimes abroad and therefore, their families can’ t afford to pay them.
But there are also situations when they need help to buy medicines which are part of the treatment for their child, medicines which are missing sometimes from the country or they just need help for daily needs, as food, transport,.....
We created two bloggs for these appeals:
If you wish to know more about these cases, please contact us and we can search even more about them! On these bloggs, you may read about some of these cases. The first written apeal is the last one recieved and in this way, they are published.
Try to help these children and also, spread the word.
All together we can offer this help! Please do it, don’ t hesitate! More people will help, more chances are to save a child.
Un copil pierdut este...prea multi, un copil salvat ... poate schimba lumea! One child lost is .... too many, one child saved...can change the world!
Childhood cancer signs and symptoms awareness campaign - Romania
This project is created by Association P.A.V.E.L. and is funded by UICC. The project aims to increase awareness of the symptoms and warning signs of childhood cancer to the general public, health care workers and parents.
The need for a targeted information and education on the early detection of paediatric cancer in Romania is supported by the very low survival rates of children with cancer. A lack of knowledge and education about the early warning signs and symptoms results in delayed referrals to physicians for early diagnosis of the disease.
This project consists of an awareness campaign, which will include: translation and adaptation of materials, brochures, leaflets, distribution and disemination of the information, regional workshops and conferences & public communications events, in partnership with local / national organizations, institutions and mass- media.
The main objectives of the project are:
* To develop a package of specific materials on childhood cancer with a focus on the importance of warning signs and early detection adressed to parents and pediatricians
* To widely distribute the information in four regions of the country
* To run awareness campaigns through workshops, conferences and media.
World Children Winner’s Games Moscow 13 - 15 June 2010
P.A.V.E.L. Association facilitated the participation of 7 Romanian children, with 7 parents and 2 accompany persons from P.A.V.E.L. at World Children Winner’s Games (http://www.winnersgames.ru/), organized by Russia The Grant a Life charity foundation and Football Club Lokomotive (WWW.PODARI-ZHIZN.RU). At this event had participated children from 8 European countries.The transport of the Romanian team at this event was supported financially by Novartis Romania.
We take this opportunity to thank to the company Novartis, to the Russian Embassy at Bucharest, to Foundation Russia The Grant a Life charity and Football Club Lokomotive and to all volunteers from Russia who accompanied our group all the days spent at Moscow, making to us a lot of beautiful surprises!
Two of the Romanian children won the second price during the sportif competitions, at chess, Chisa Ionela Claudia and ping - pong game (table tennis), Campean Alexandra Maria. All seven Romanian chidren have participated with success at 1 or 2 competiotins. For all, children and parents, this event was one of most beautiful ones which happened in their life! So, THANKS!
20 years of help for Romanian people from Kinderen in Nood, Holland
On 3rd of September 2010, the Dutch foundation Kinderen in Nood (SKIN) celebrated 20 years since this foundation was created and started to help in Romania, and later, in other countries.
Its help was focused towards very poor people, in need: children, elderly people, .. but also towards institutions from different regions of Romania.
Year after year, many transports (big trucks) were sent towards Romania, with goods for individuals, orphanages, for schools, elderly houses, hospitals, but also there were financially supported different projects and the refurbishment in different institutions. And the list is long.
With an extraordinary devotion for the cause of children and people in need, the team of SKIN (Joop Heerschop, president, Anny Heerschop, Mies Disse, Johan Klijnman, Eric de Jong, Henk Schilder, Jan Roskam and many volunteers) was constantly and heart fully involved as support for the Romanian people, in their hard times. They were present with their help in Transilvania, Moldova and Muntenia, bringing joy to countless families.
From 1997, PAVEL Association benefited also from SKIN support. The team of SKIN answered positively to most of PAVEL’s requests for help. They sent many trucks with goods (furniture, blankets, sheets, equipment) for hospitals (for M.S.Curie hospital, for Fundeni hospital, for Oncologic Institute, for Dr. V. Gomoiu hospital (where it was also completely refurbished the clinical section ATI), for Institutul National de Recuperare - Medicina Fizica si Balneoclimaterica (Filantropia), goods (clothes, shoes, toys, food) for the ill children and their families, for ladies with cancer (breast prosthesis); they bought a flat which was offered with rent free to PAVEL, to be used as Parents' House (since 1998, parents and children from province who were and are coming in Bucharest for children' s treatment have been staying at PAVEL House for free). They are also helped financially for the costs of keeping the house going. Besides, SKIN has answered to other PAVEL’ s requests of help for other organizations or institutions, as: PRO VITA Association, Leaganul de Copii Sf. Ecateriana (Orphanage nr. 1), another orphanage near Focsani, Technique College Anghel Saligny,...
I met them in their first mission here, in September 1990, in Romania - when my family offered a short accommodation, for few of them, and which was repeated for others of their team, in the next years. And so, we became friends. I saw them in Romania during the unloading of the trucks and also repairing or installing equipment, I saw them working hard in preparing the transports in Holland; they were even together with us, later, unloading the goods at Fundeni hospital. We were together at the official opening of Parents' House on 10th October 1998, opening made by Mr. Emil Constantinescu, ex - President. From all of these moments, I and we can only say: what extraordinary people they are! Deeply of our heart, thanks from all of us and on behalf of all beneficiaries. We wish to all of you, the team and volunteers of Kinderen in Nood only the best together with your families, a lot of strength and God bless you!
The National Patients’ Conference
11 - 13 March 2010
Sanatatea Media Group is organising in Bucharest, the National Patients’ Conference, in partnership with the Ministry of Health.
What motivates us? In 2009, the Romanian health system performance deteriorated fast. Romania currently occupies the penultimate position in a group of 33 European countries. In 2008 Romania occupied the 27th position in a group of 31 countries (ASR Report, November 2009).
The National Patients’ Conference will bring together all the actors involved in the Romanian healthcare system: patient associations in our country, officials of the Ministry of Health, representatives of the Health Insurance House, representatives of the Directorate of Public Health, officials of the Health Commissions of the Chamber of Deputies and Senate of Romania, managers of major hospitals in Romania, doctors, pharmacists and representatives of pharmaceutical companies. This conference will also host the first conference of the Romanian Sleep Disorders Association (March 11, 2010) and the first Pediatric Oncology Conference in Romania (in partnership with the Association P.A.V.E.L., on March 13, 2010).
There will be 3 days of thematic debates (11th -13th of March 2010) and the topics of discussion will be presented by some of the most famous doctors and pharmacists in Romania. The interactive event is designed so that participants can ask the officials and specialists invited questions they consider important for the improvement of their health condition. In this way, we hope participants will find the best answers to the problems they face.
Besides the communication sessions, we will also organize the Info Patients Exhibition. The exhibition offers free presentation stands for: patient associations, pharmaceutical companies, other companies that offer products and services for patients.
The event ends on March 13, the European Patients’ Day.
The National Patients’ Conference is an event organized by SanatateaMediaGroup, in partnership with:
• Ministry of Health
• The National Health Insurance House
• The Health Insurance House of Defense, Public Order, National Security and Judicial Authority
• Medical College in Bucharest
• College of Pharmacists of Romania
• Carol Davila University of Medicine and Pharmacy, Bucharest
• Carol Davila University Foundation
• Al. Trestioreanu Oncology Institute, Bucharest
• Ion Chiriricuta Oncology Institute, Cluj Napoca
• Grigore Alexandrescu Emergency Hospital for Children
• Maria Sklodowska Curie Emergency Hospital for Children - Department of Pediatric Oncology
• Floreasca Emergency Hospital, Bucharest
• Emergency Hospital of Plastic Reconstructive Surgery and Burns, Bucharest
• Marius Nasta Institute of Pneumology, Bucharest
• Romanian Academic Society (RAS)
• Association for Democracy Implementation (ADI)
• Romanian Association of Plastic Surgeons
The following Romanian Patients’ Associations also confirmed their presence:
• P.A.V.E.L. Association
• Romanian Cancer Society
• Romanian Association for Cancer Prevention
• Williams Syndrome Association
• Antiparkinson Association
• Miastenia Gravis National Association
• National Association for patients’ protection
• Volunteer Blood Donors Association
• SOS Infertility Association
• SANO-HEP Romania Association
• E.M.M.A. Organization
• Autism Romania
• PROTCARD Foundation - Foundation for adults suffering from Congenital Heart Disease
• Wings Association
• Association for Prevention of Osteoporosis in Romania (ASPOR)
• Prader Willi Association
• "Sweet Land" Association of Children and Youth with Diabetes in Constanta
• Romanian Association of Hemophilia
• Romanian Cystic Fibrosis Association
• Romanian Muscular Dystrophy Association
• Multiple Sclerosis Society in Romania
• Mini Debra Association
• Disabled People Society, Zalău
• National Organization of Disabled People in Romania
• Cutaneous Stoma Association
• National Association for Children and Adults with Autism in Romania
• Lupus Romania Association
• Association of dialysed patients Galati
• Romanian Society for the elderly and the Alzheimer patients
• Romanian Foundation for lysosomal diseases
At present, we are waiting for confirmations of participation from other health institutions in our country. As we receive their confirmation we will update the information on www.infopacienti.ro, online platorma dedicated to both the National Patients’ Conference and the Romanian Patients’ Manifesto. The Patients’ Manifesto is the first document in our country, written as an online petition, which advocates for improving patients’ situation in Romania, by establishing: The Patients’ Month (every March), The National Patients’ Conference (ending every year on March 13, the European Patients’ Day), The Patients’ Advocate and Patients’ Community.
We think it will be really important for Romanian pacients to have direct acces to the information you can share.
If you would like to participate, you may subscribe at: http://infopacienti.sanatateatv.ro/inscrie-te-acum/
The team of the Association P.A.V.E.L. together with volunteers and sponsors celebrated Christmas in three oncological wards from Bucharest on 21st of December 2009. Big THANK YOU to all the generous people who made this happen!
On 13th of December Association P.A.V.E.L. participated at IWA Bazaar, the biggest such of event for Christmas in Bucharest.
On 12th of December Association P.A.V.E.L. was invited to participate at a charitable event organized by the Association M.A.M.E.
Workshop of P.A.V.E.L. team and volunteers, together with children for preparing Christmas ornaments and greeting cards
News
Donation on Behalf of Lacea Family
Adrian Marian Lacea was born November 14th, 1950 and took his last breath on September 26, 2009. He graduated with a Masters degree in the field of electronics, a field he was most passionate about. For years, he applied his knowledge as an engineer working for the Electronics Research Institute in Bucharest. Following 1989, he built the foundation of his own company importing electronic components. His dedication for his work created a strong basis that enables the company to successfully continue its activity despite having lost its founding father.
For Adrian, his family and his work encapsulated the epicenter of his life.
Adrian turned the members of his family into warriors. His strong will and courage to fight this disease is admirable, and an inspiration for many. Several months after receiving his diagnostic, he made the following affirmation: "I've never been happier as I have since I discovered I had the disease; and this is due to having a family who loves me, who supports me and who fights with and for me. I learned to enjoy every moment life has to offer, to live it to the max and to not let insignificant things consume my energy". Adrian Lacea will forever be in the hearts of those who loved him.
Dear Lacea Family,
PAVEL Association would like to express its sorrow for Mr. Lacea's suffering and to send our condoleances to his entire family for their loss.
We are deeply touched by your choice and gesture and we assure you that the funds will be used for helping ill children and youth, in the name of your father! We thank you!
May he rest in peace,
Olga Cridland and the PAVEL Association Team
Today, September 27 2009, we received the following letter of donation from the Lacea family: "My name is Anita Lacea. My father, Adrian Marian Lacea, passed away yesterday, September 26th 2009 at the age of 58 after a long and difficult fight against cancer.
My father was never found of fresh cut flowers - once severed from their roots, their life is ended. Therefore, my mom, my brother and I have decided to donate the money otherwise spent on funeral flowers by those coming to pay respect one last time, to PAVEL Association.
My father was being treated for cancer at Bucharest Institute of Oncology; I know the association is active within the institute and dad would be happy to know that we want to help the children suffering of cancer and their families.
I don't know if one can donate in the name of a certain person, but in case you have an influx of donations in the next few days, please direct your thoughts towards my dad's soul.
We have printed fliers containing information about PAVEL, your bank account numbers as well as the web-site that allows donations through the use of credit cards. Also, for those who cannot use these options, we have created a donation box. We will donate the entire sum raised at the end of the funeral.
We hope with all our hearts that our effort will be helpful. Thus, we will honor our father and husband.
May he rest in peace!
Anita, Alin, Adriana Lacea
Association P.A.V.E.L. has received over $1500 through the fundraiser set up by the Lacea family. The list of contributors excluding those who asked for anonymity, can be found here: http://www.active.com/donate/asociatiaPAVEL/adrianlacea
Asociation P.A.V.E.L. is greatful for every contributor's efforts!
At the request of the family Lacea, there were opened three accounts (in USD, EURO and RON) for the Adrian Lacea Fund.
These are:
Asociatiei P.A.V.E.L. Account for RON
Fond Adrian Lacea
BANCPOST S.A., sucursala TITAN, sector 3, Bucuresti
Cont IBAN: RO32BPOS71003031332RON04
Account holder: Association P.A.V.E.L. Account for USD
Name of bank: BANCPOST S.A., branch TITAN
Address bank: Bvd Basarabia, Sector 3, Bucharest, Romania
Adrian Lacea Fund
IBAN account: RO27BPOS71003031332USD07
SWIFT/sorting code/aba/chips: BPOSROBU
Account holder: Association P.A.V.E.L. Account for EURO
Name of bank: BANCPOST S.A., branch TITAN
Address bank: Bvd Basarabia, Sector 3, Bucharest, Romania
Adrian Lacea Fund
IBAN account: RO08BPOS71003031332EUR0A SWIFT/sorting code/aba/chips: BPOSROBU
"The Adrian Lacea Cancer Fund was also created online and can be accessed at the following link, where you can donate using any major credit or debit card, with no incurring fees: http://www.active.com/donate/asociatiaPAVEL/AdrianLacea"
The fundraiser set up by the Lacea family has raised over $1700 that will directly benefit Association PAVEL. The list of contributors excluding those who asked for anonymity, can also be found at the above link"
Terry Fox Marathon of Hope
Terrance Stanley Fox was born July 28, 1958, in Winnipeg, Manitoba
March 9, 1977 - Terry discovers he has a malignant tumour in his right leg; the leg is amputated 15 centimetres (six inches) above the knee. The night before his amputation he reads about an amputee runner and dreams of running.
February 1979 - Terry begins training for his Marathon of Hope, a cross-Canada run to raise money for cancer research and awareness. During his training he runs over 5,000 kilometres (3,107 miles).
October 15, 1979 - Terry writes to the Canadian Cancer Society to support his run: "I'm not a dreamer, and I'm not saying this will initiate any kind of definitive answer or cure to cancer, but I believe in miracles. I have to."
April 12, 1980 - St John's, Newfoundland: Terry dips his artificial leg into the Atlantic Ocean and begins his odyssey. He runs an average of 42 kilometres a day (26 miles) through six provinces.
September 1, 1980 - After 143 days and 5,373 kilometres (3,339 miles) Terry stopped running outside of Thunder Bay, Ontario; his primary cancer had spread to his lungs. Before returning to BC for treatment Terry said, "I'm gonna do my very best. I'll fight. I promise I won't give up."
February 1, 1981 - Terry's hope of raising $1 from every Canadian to fight cancer is realized. The national population reaches 24.1 million; the Terry Fox Marathon of Hope fund totals $24.17 million.
June 28, 1981 - After treatment with chemotherapy and interferon, Terry Fox dies at Royal Columbian Hospital, New Westminster, British Columbia - one month short of his twenty-third birthday.
In his honour annual runs are held around the world and more than $400 million have been raised.
This year, on 5th of September, it had place also at Bucharest the Terry Fox Marathon of Hope, where students, parents and teachers of the American International School of Bucharest have participated. The funds raised with this occasion will be donated to the Association P.A.V.E.L. One of the sponsors is ROMTELECOM. Each year the American International School of Bucharest hosts a Terry Fox Run and this is designed to raise awareness of the need to find a cure for cancer as well as raise funds to support cancer research and cancer patients. At the event have participated some children from hospital, together with their parents and four representatives from Association P.A.V.E.L. (Olga Cridland, Flori Halalau, Nadia Ulmeanu, Andreea Culcea).
Thank you, to all students and their parents, thank you to teachers and the Board of the school! Congratulations for organizing such of big and special event! Thank you Mr. Lorne Bird, headmaster.
Terry Fox’ Letter Written to Solicit Sponsors
"The night before my amputation, my former basketball coach brought me a magazine with an article on an amputee who ran in the New York Marathon. It was then I decided to meet this new challenge head on and not only overcome my disability, but conquer it in such a way that I could never look back and say it disabled me.
But I soon realized that that would only be half my quest, for as I went through the 16 months of the physically and emotionally draining ordeal of chemotherapy, I was rudely awakened by the feelings that surrounded and coursed through the cancer clinic. There were faces with the brave smiles, and the ones who had given up smiling. There were feelings of hopeful denial, and the feelings of despair. My quest would not be a selfish one. I could not leave knowing these faces and feelings would still exist, even though I would be set free from mine. Somewhere the hurting must stop... and I was determined to take myself to the limit for this cause.
From the beginning the going was extremely difficult, and I was facing chronic ailments foreign to runners with two legs in addition to the common physical strains felt by all dedicated athletes.
But these problems are now behind me, as I have either out-persisted or learned to deal with them. I feel strong not only physically, but more important, emotionally. Soon I will be adding one full mile a week, and coupled with weight training I have been doing, by next April I will be ready to achieve something that for me was once only a distant dream reserved for the world of miracles – to run across Canada to raise money for the fight against cancer.
The running I can do, even if I have to crawl every last mile.
We need your help. The people in cancer clinics all over the world need people who believe in miracles.
I am not a dreamer, and I am not saying that this will initiate any kind of definitive answer or cure to cancer. But I believe in miracles. I have to.
Terry Fox, October 1979 "
Press Release
American International School of Bucharest
AISB’S 10th Annual Terry Fox Run
This year will mark AISB’s 10th annual Terry Fox Run. The Terry Fox Run is a non-profit, non-competitive event designed to raise the public's awareness of the need to find a cure for cancer, and raise money for cancer research. To date we have raised over $US 100,000 to support the fight against cancer here in Romania, with each and every dollar raised has been donated to local Romanian institutes researching cures for cancer. This year the money will be donated to:
Asociatia PAVEL (http://www.asociatiapavel.ro/index.php?ln=en&cat=1), a local group working specifically to support children with cancer.
In 1977, at the age of 19, Terry Fox was diagnosed with osteogenic sarcoma (bone cancer) in his right leg. His leg was amputated 6 inches above his knee. While in hospital, Terry was so overcome by the suffering of cancer patients that he decided to run across Canada to raise funds for cancer research. His journey was called, The Marathon of Hope.
On April 12th, 1980, Terry Fox began his mission of running across Canada. His goal was to raise $2 million in order to help researchers find a cure for cancer. His task was an ominous one, as he RAN CLOSE TO A MARATHON EVERY DAY, FOR 144 DAYS STRAIGHT.
On September 1st, 1980, after running 3,339 miles, Terry was forced to end his run, as cancer had begun to spread throughout his body. On June 28th, 1981, Terry Fox passed away, just one month short of his twenty-third birthday.
While he did not realize his mission of running across Canada, Terry Fox more than realized his goal of raising $2 million. In fact, he raised more than $24 million, and to date, via Terry Fox Runs held throughout the world, in excess of $400 million has been raised in the name of cancer research.
On July 10, 1980, after being forced to end his Marathon of Hope as cancer had spread through his body, Terry Fox said, “Even if I don’t finish, we need others to continue. It’s got to keep going without me …” The main goal of AISB’s Terry Fox Run is to help keep Terry Fox’ dream alive here in Romania.
Playground for children with cancer
Today, 12th of August 2009, it had place the official opening of the playground and the small park "Children' s Voices" in the yard of the Oncologic Institute of Bucharest (thanks to a generous sponsorship from UniCredit Tiriac Bank) in the presence of children, parents, vice mayor of sector 2, representatives of the Oncologic Institute, of the UniCredit Tiriac Bank and the P.A.V.E.L. team and volunteers. Soon it will be prepared a special room in the same Institute, dedicated for activities (learning, informing and relaxing) and support groups for young people ill of cancer (thanks to a sponsorship from UniCredit Bank and Microsoft).
Also today it had place an exhibition with artworks made by children in the art creation camp, which had place two weeks ago at the Monastery Hurezi.
With this occasion, for the first time we have offered the Diploma of Gratitude P.A.V.E.L. to the Oncologic Institute, as for best partner of 2009, to UniCredit Tiriac Bank, as sponsor and to Mrs. Carmen Sava, for her special involvement as volunteer at P.A.V.E.L..
Here there are some images during the preparation of the playground and the parc.
Impressions from “HANDS TENACIOUS OF LIFE PROJECT” (Young European Cancer Survivors), Giving Hope Messages Through Art (Cappadocia - July 8, 2009). Organizer: LOSEV foundation, Turkey.
Association P.A.V.E.L. was represented in this project by 4 survicors: Ramona Cherciu, Victor Dicu, Gabriela Din and Alexandru Georgescu, together with a team leader, Tãnase Elena Raluca.
Ramona-Elena Cherciu: When I received the invitation from PAVEL Association to join a group of survivors in an adventure in the heart of Turkey I felt like I received the best gift – the kind that comes when you least expect, but most need it – in my case, a long-due get-away from my all too busy daily life, a timely pause for a needed self-reflection.
I therefore came to Kapadokya with an open mind and heart, ready to embrace my gift and enjoy the Oriental novelty it brought with it. Little did I know that I would experience such wonders as see water turn into flowers in the best Ebru in the world (mine), feel the touch of sunrise winds over the mysterious Kapadokyan stones, watch in wonder a skyline painted in the bright colors of cheerful hot-air balloons (a dear dream of my childhood come true), smell the scent of wet clay on my bare hands while trying desperately to manage my lack of hands-feet coordination on the pottery wheel or to save my hand molded giraffe from looking like a camel or an ostrich.
Beyond all of these, I know that what I will treasure most from this project is this extra-ordinary meeting with extra-ordinary people, who – like me, have kept their hearts smiling in hard times and are now sharing their smile with the world. I am deeply honored to have met and shared a brief moment in time with each and every one of them.
Victor Dicu: My expectations about Turkey were exceeded, even though many friends and acquaintances have described this place to me in beautiful words.
The landscape is superb and the accommodation provided is above the natural conditions of this area.
Fears: before I came here, I was worried about the possible language barrier. I don’t speak English fluently, but now I think I can manage it better.
I think the motto of this project should be: “Nothing is impossible!”
Gabriela Din: For me, this project represents the chance to socialize and to exchange impressions with other people who went through similar experiences.
Together we can be an example for ill children, an example that with a bit of courage and help they can do it!
I wish that we, the group members of this project, had communicated openly, but there were some difficulties related either to the lack of knowledge of the English language or to the fact that some of us are shy, but in the end I think all of us will be friends and maybe we will keep in touch. I will miss each and every one!
All participants to this project are examples to follow for ill children and I hope that our optimism and courage will make a difference.
Alexandru Georgescu: This project has exceeded any expectation I had. It is a wonderful project, which helped me to get to know and spend time with people who have been through similar experiences with mine. I appreciate this project as being thought through and well organized.
Through this project, I now live an unforgettable experience and I find myself in a wonderful and unique place on Earth.
Benefits: until now, I can say that due to this project and its activities I managed to acknowledge what I have been through. Also, I have experienced a new approach to life and its difficulties: the art as source of hope, especially through the people that I have met here.
We are just at the beginning of the project, but I already feel more confident in myself and more cheerful inside.
I take this opportunity to thank Lösev and P.A.V.E.L. Association for this invitation.
My motto for you: “Just do it!”
Tãnase Elena Raluca: What should I say? How could I start? It is quite hard to tell you in a few words my fears or the reasons for my being here (I will try to limit myself to what is important): it is everything about heart, life, mission and duty. Probably at this moment I do not fully realize what a wonderful experience I currently live, but time will show me …
But to take part in an event, project, workshop and to be treated like royalty is one of the greatest survivor support tools that could ever be created. Even now, in the middle of the night, when we are all tired, I realize that it is so relaxing to be in such a wonderful place, surrounded by such wonderful human beings.
“Hands Tenacious of Life Project” is a getaway and an adventure for our heroes who are constantly fighting with a ruthless disease.
Away from their normal life routine, these youngsters build wonderful relationships in such an inviting place like Karlikevi Hotel, because here you can really enjoy yourself.
As a person and as a representative of P.A.V.E.L. Association, I am very proud to be part of such a project developed by Lösev Foundation. This organization is an example to be followed, because they make a difference in their world. I see so many programs to the benefit of children, youngsters, and families affected by cancer and leukemia.
Lösev is doing this not only at a national level, but also (as you can see now), at an international level, over passing barriers like language, culture, traditions, history, changing small into big, negative into positive, ideas into actions and I in us. Thank you!
1 June 2009 organized by P.A.V.E.L. , for children from oncopediatrics, at the clinics from Bucharest
This was 1 June 2008
Will you Commit?
I returned to cycling this year for one reason: to fight for the 28 million people affected by cancer worldwide.
We are making tremendous progress in this fight, but there’s still so much to be done. By next year cancer will be the #1 killer in the world and yet most of the world’s leaders lack any real plan to fight back.
During my 20-day ride in the Tour I'm calling on leaders around the world to make major commitments to fight cancer worldwide – but I can’t do it alone.
As a first step, will you join me and sign the World Cancer Declaration – a major global push to pressure the world's leaders to act now on cancer? http://livestrongaction.org/campaigns/commit-fight-cancer
As an added incentive, a donor has pledged to give $30,000 if we can collect 30,000 signatures before the end of the Tour.
I'll send these signatures to world leaders after the Tour de France and pressure them to make cancer a priority in their own countries. It’s our best chance to push for better treatment, more funding for cancer research and access to care for everyone around the world.
Without your commitment, these leaders won’t pay attention. Will you sign the declaration then ask your friends and family to do the same?
When you sign the declaration, you'll be able to dedicate that action to a cancer survivor or caregiver who has inspired you. I dedicated my signature to my mom, who stuck by me – and fought alongside me – throughout my cancer fight. Who will you dedicate yours to?
We’ll be keeping you updated on our progress over the coming weeks – meanwhile, join me at LIVESTRONG Action and make your commitment now: http://livestrongaction.org/campaigns/commit-fight-cancer
LIVESTRONG,
Lance and the LIVESTRONG Action team
UICC's Global Cancer Control Community
Invites you to join the discussion on Cancer Registries & World Cancer Declaration Target 2
In July, Ask the Expert continues with Target 2 of the World Cancer Declaration and its call for improving cancer surveillance systems, in particular cancer registries. Cancer registries are an essential component of any well developed national cancer control programme and provide needed data to develop effective and targeted interventions that best serve national populations.
Ask the Expert wants to hear from you on the state of cancer registries in your country and welcomes comments on the following questions:
1. Do you have a cancer registry system in your country? If so, please describe. If not, what are the main obstacles in your country that hamper development of a national cancer registry?
2. Does your country rely on a population-based or representative cancer registry?
3. If possible, do you know approximately what percentage of the population is covered by the cancer registry?
4. Which institutions are responsible for cancerdata collection - government agencies or others?
5. How can health care professionals lobby government and health officials to invest in cancer registry development?
Our experts for this session are Drs. Hai-Rim Shin and Ebert Poquioma. Dr. Shin currently serves as head of the Data Analysis and Interpretation Group, International Agency for Research on Cancer, World Health Organization. Dr. Poquioma, member of the Cancer Epidemiology and Statistics Department, INEN Peru, will be available to provide assistance in Spanish to participants from Latin America.
To participate, http://www.uicc-community.org/index.php?option=com_content&task=view&id=181&Itemid=372
EMEA report on information on benefit-risk of medicines
The European Medicines Agency (EMEA) has published a report on "Information on benefit-risk of medicines: patients’, consumers’ and healthcare professionals’ expectations".
Following a request from patients, consumers and healthcare professionals, the European Medicines Agency carried out a survey to find out ways to improve the information it provides on the benefits and risks of medicines. This was followed by a workshop, where the participants had the opportunity to share their experiences and to make proposals for improvement.
The EMEA together with the Patients’ and Consumers’ Working Party (PCWP), and the Healthcare Professionals’ Working Group (HCP WG) have prepared a report on the outcome of this project and proposals for action. The document is available here: http://www.emea.europa.eu/pdfs/human/pcwp/4092609en.pdf
We would be grateful if you could disseminate this e-mail to anyone else who might be interested in this topic.
Pleading for Life
“Non avevo mai pensato seriamente alla mia morte.” Translation: ‘I have never thought seriously about my own death before.’ This is the beginning of a book I’ve been reading for a few days. It’s quite strange that I start my pleading for life in this way, but of all beginings this I’ve found the most suitable.
I’ve always thought I can do it all, that I’ll succeed in pleasing everyone and be happy. For a while I’ve managed to cope with a very busy schedule, having little rest and inappropriate food. I was somehow proud that I managed to ‘educate’ myself to do more and more things on very little resources. But soon I was proven wrong. I wasn’t right at all. Milliards of my body cells were going to fight back.
On November 18, last year, I found out that I have cancer. I had to read the diagnosis in front of the slightly embarassed doctors. I knew they had prefered that my parents gave me the news, but I understood. After they (the doctors) had left, as much as I tried not to, I burst into tears. I wasn’t looking to blame anyone or a reason for why this was happening to me. I knew that it was just a fact and I had to deal with it. I cried a little with my mum too, but I was crying especially because I was seeing her cry, and then we were laughing together encouraging each other that everything was going to be fine.
The first three days were the most difficult as I couldn’t help crying all the time, days in which I was asked to comply with my new status of a … mortal, which I kept denying over and over again. I wasn’t thinking whether it was going to be fine or worse, I just refused to be part of those statistics, it was enough for me to know them. Anyway, it wouldn’t have helped either to accept death or to tell myself that everythig was going to be okay. I’ve tried to remain realistic, but I also know that there’s still so much for me to do before ... I ‘leave’.
And so I’ve started chemotherapy. I’ve beared the needeles and the nausea, I’ve tried to eat and drink liquids but it seemed practically impossible to do it. Soon, my hair started to fall. Although many people tend to make a drama out of their suffering, it’s no so unbearable. And the breaks between the chemo sessions make every second of pain worthwhile. I still feel a great mental discomfort about the branulas; and my veins have started fighting against them.
However, I’ve started to fight against the disease through other means as well beside chemo. I know that my moral state is very important, but this is not a problem for me, I’ve always been optimistic … so optimistic that I would sometimes be accused of too much optimism. Then, I’ve given up the unhealthy food with additives, sugar, and fat products, pork, veal, later, the chicken and, finally, the fish, as I’ve read about how certain foods can cause cancer.
I’m having my operation tomorrow. I’ve done two chemo sessions up to now, and after the surgery I’ve got another four. In July I’ll be able to call myself healthy again. I can’t wait! Although I know there is still a long way to go. But in July all this will have been worthwhile. I’ll be myself again, the one I used to be. Perhaps somehow changed, with a healthier lifestyle, which evethough it may sometimes be a little uncomfortable, it would keep me away from the hospital.
Diana P.
18 years old, Romania
In memoriam Gilda Sabadac (11.02.1996 - 3.03.2008)
This video is about a Romanian little girl named Gilda that was diagnosted with a brain tumor when she was 10 years old.
She lost her battle at the age of 12.
Music : Andra - Prietenie adevãratã
A big THANK YOU, to MICROSOFT!
On January 23, 2009, Microsoft has contributed as sponsorship with software (41) valued at USD $7,694.00 to Association P.A.V.E.L.. (for its programs for Center, 2 playrooms and education).
Microsoft and its employees have long recognized the importance of being engaged in supporting communities around the world. Through our Unlimited Potential commitment to bring technology to the next 5 billion people, Microsoft seeks to reach the first billion people by 2015. The Microsoft Unlimited Potential - Community Technology Skills program focuses on improving IT skills for underserved individuals and communities through community technology centers or telecenters.
By offering grants of cash, software, and curriculum we can partner to create social and economic opportunities that can change peoples' lives and transform communities. For more Information about Microsoft and its investments in communities around the world, please visit www.microsoft.com/unlimitedpotential.
24 April 2009 European Parliament votes on important legislation impacting on cancer patients
Cross Border Healthcare - weeping away obstacles
The European Parliament approved plans on 23 April 2009 to give EU citizens the right to seek healthcare abroad more easily and be reimbursed for the costs. MEPs also want patients to be properly informed about their rights when they are treated outside their home Member State. Under the draft directive, patients will have the right to seek healthcare abroad but Member States may nonetheless introduce a system of prior authorisation for the reimbursement of hospital costs, if the financial balance of the Member State's social security system could otherwise be seriously undermined. Importantly for rare cancer patients, parliament has added special rules for patients with rare diseases and disabilities which include rare cancers that might need special treatment. Patients affected by rare diseases should have the right to reimbursement, say MEPs, even if the treatment in question is not provided for by the legislation of their Member State and this shall not be subject to prior authorisation. Special costs for people with disabilities must also be reimbursed under certain conditions.
Read more: http://www.europarl.europa.eu/news/expert/infopress_page/066-54194-111-04-17-911-20090422IPR54193-21-04-2009-2009-true/default_en.htm
However a word of caution! Member States are much more reluctant to adopt this legislation. It is therefore very important to use the European Parliament's positive vote to keep up pressure at national level.
Rare Diseases - an invisible threat
Also adopted was a Communication on rare diseases which contribute heavily to the death rate in Europe but often go unrecognised. Concerted action at EU and national level is needed to tackle this challenge. MEPs want the Commission to present implementing measures by 2012, These should cover inter alia: a) the budgetary measures necessary for the Community Programme on Rare Diseases to be effective; b) the creation of relevant networks of centres of expertise; c) the collection of epidemiological data on rare diseases; d) the mobility of experts and professionals; e) the mobility of patients; and f) consideration of the important role of patient groups. This is a major opportunity for patients suffering from rare and difficult to treat cancers.
Read more: http://www.europarl.europa.eu/news/expert/infopress_page/066-54198-111-04-17-911-20090422IPR54197-21-04-2009-2009-false/default_en.htm
Patient Safety -- war on hospital bugs
Patient safety is of increasing concern in healthcare systems everywhere. The most common problems are healthcare associated infections, medication-related events and complications during or after operations. Many such problems could be avoided fairly easily. To help achieve this aim, MEPs voted for a draft Council recommendation on patient safety, including the prevention and control of healthcare associated infections.
Read more: http://www.europarl.europa.eu/news/expert/infopress_page/066-54196-111-04-17-911-20090422IPR54195-21-04-2009-2009-false/default_en.htm
For more information please contact Hildrun Sundseth, ECPC Director EU Policy. ECPC - European Cancer Patient Coalition
A very good site: The Current Oncology
The Current Oncology website is a portal through which health professionals of all levels gain access to articles and information covering the broad field of oncology. Established in 1994, Current Oncology is a Canadian based and internationally distributed journal which is published bi-monthly plus special supplemental issues. This journal represents a multidisciplinary medium, encompassing health care workers in the field of cancer therapy and whose aim is to report upon and to review progress in the management of all areas of this disease.
An important part of recovery is receiving support from others who have been through a similar experience. It can be very reassuring to find that others share similar feelings. These and other Journals published by Multimed Inc., offer easy to understand facts and information that lend themselves well to giving patients a better understanding of their disease while helping both themselves and loved ones in dealing with cancer. We would gladly welcome a chance to partner up with you and publish patient supplements or brochures or issue any material related to oncology. Some of the supplements we have published in the past are, Living with Prostate Cancer - Chemotherapy in Prostate Cancer: A Guide for Patients, Living with Breast Cancer: What You Need to Know and most recently Learning About Colorectal Cancer - Treatment Options for Colorectal Cancer: A Guide for Patients. To learn how supplements can enhance your marketing program, please visit our website. The website: www.current-oncology.com
World Cancer Campaign
4 February 2009 "Today's Children, Tomorrow's World"
On 4 February, World Cancer Day, the International Union Against Cancer (UICC) will launch “I love my healthy active childhood”, the second full-year theme in our “Today’s children, tomorrow’s world” cancer prevention campaign. Association P.A.V.E.L. is the single organization from Romania, member of UICC.
The prevalence of overweight and obesity is rising dramatically among adults and children around the world.
According to the World Health Organization, 1 billion adults are overweight, and at least 300 million of these are clinically obese.
The International Obesity Taskforce estimates that one out of every ten school-age children is overweight. Of these, around 30-45 million children, that is 2-3% of children aged 5-17, are obese.
Being overweight or obese has been shown to increase the risk of cancer among adults.
World Cancer Day 2009 marks the start of a year-long campaign, where UICC will work with parents, teachers and decision-makers around the world to encourage kids to eat a healthy diet, be physically active and maintain a healthy body weight.
I LOVE MY HEALTHY ACTIVE CHILDHOOD
about the world cancer campaign
The International Union Against Cancer (UICC) initiated the World Cancer Campaign in 2005 in response to the Charter of Paris of 2000.
The Charter of Paris chose 4th February as World Cancer Day. Since 2006, UICC has coordinated World Cancer Day activities, supported by members, partners, the World Health Organization, the International Atomic Energy Agency, and other international bodies.
"Today's children, tomorrow's world" – prevent cancer with healthy habits
This is a five-year programme, launched on World Cancer Day 2007.
It aims to raise awareness about the ways we can prevent cancer through the choices we make. 2007 introduced the overall theme.
From 2008 to 2011, each year will focus on a different issue:
2008 – give children and young people a smoke-free environment 2009 – encourage an energy-balanced lifestyle based on healthy diet and physical activity 2010 – learn about vaccines against viruses that cause cancers (e.g. HBV vaccines) 2011 – teach children and teenagers to avoid UV exposure by being "sun smart"
"Today's children, tomorrow's world" focuses on kids. Healthy habits learned early in life have a significant impact in later years. The World Cancer Campaign calls on all those with a say in how children live their lives – parents, teachers, health workers and decision-makers – to help children make healthy choices that can mean a cancer-free future.
Each year, UICC helps its members and partners to run public awareness campaigns in their countries, measure their effectiveness, and promote regional education and mobilization projects.
2007 "Today's Children, Tomorrow's World" It aims to spread information and share knowledge about actions and technologies from lifestyle behaviours to groundbreaking vaccines for cervical cancer to underscore prevention in fighting cancer.
2008 "I love my smoke-free childhood"
Provide children everywhere in the world with a smoke-free environment.
2009 "I love my healthy active childhood" Raise awareness about the link between overweight, obesity and cancer. Encourage kids to eat a healthy diet and be physically activity.
Being overweight can lead to cancer later in life.
Encourage kids to eat a healthy diet and be physically active.
Overweight and obesity
Dietary factors, physical inactivity, overweight and obesity are estimated to account for approximately 30% of cancers in western countries, making diet and physical activity second only to tobacco as a preventable cause of cancer. This proportion is thought to be about 20% in developing countries and it is envisaged that this figure will grow.
“Energy balance” is defined as a balance between energy intake, in the form of food and drink, and energy output, in the form of physical activity. An imbalance between energy intake and energy expenditure leads to weight gain or loss.
International Childhood Cancer Day
15 February 2009
The International Confederation of Childhood Cancer Parent Organisations (ICCCPO) is a worldwide network of organisations of parents of children with cancer.
It was founded in May 1994 in Valencia, Spain, and now has membership of about 100 organisations from over 60 countries. Association P.A.V.E.L. (organization of parents whose children have cancer) is the single member from Romania, of ICCCPO, from 1998 - with an active participation.
ICCCPO' s focus is on the cooperation and sharing of information and experiences between parent groups around around the world, so that all can benefit from it and become more effective in improving the treatment and care of children with cancer in their own countries.
On February 15th each year, members of the International Confederation of Childhood Cancer Parent Organisations (ICCCPO) from countries around the world will join together in organising activities to mark International Childhood Cancer Day (ICCD).
The first ever ICCD was held on 15th January 2002. The day was a great success with ICCCPO members in 38 countries organising a range of activities to mark the day. Since then, the event has grown with 47 countries involved last time. It is hoped that this number will continue to grow. In ROMANIA, PAVEL organised a big event at the National Comedy Theatre in Bucharest.
ICCD is your organisation’s chance to…
• EDUCATE your community about the issue of childhood cancer and tell people about
the valuable activities that your organisation carries out
• ATTRACT NEW SUPPORTERS to give their time, money or services to your cause
• MOTIVATE existing staff, volunteers, members and supporters by getting them involved in fun events
- Fundraising and media events held throughout February.
The purpose of the International Childhood Cancer Day (ICCD) is to:
- Educate the general public about childhood cancer
- To raise money through fundraising events
- To promote the work of local parent organisations
When diagnosed early enough, and treated with the appropriate protocols, approximately 70% of childhood cancers are curable.
However, today only 20% of the world's children benefit from advanced medical care.
Children living in the underdeveloped countries account for 80% of the world's population of children. Some of these children have cancer and are currently denied the right to hope for a cure.
ICCCPO exists so that the parents of these children have access to the information they require to make educated decisions about their child's treatment.
The treatment and care of childhood cancer requires a whole interdisciplinary team, to provide not just the medical treatment of the child (which may include surgery and radiation), but also the psychosocial support for the child and the whole family.
Close cooperation between the medical team at the hospital and the parents of the child is considered to be an essential component of the successful treatment and care of the child.
Parent groups have an integral and vital part to play, in supporting the children and the families.
Children with cancer need everyone's help!
General Information and Facts on ICCCPO and ICCD
• The International Confederation of Childhood Cancer Parent Organisations (ICCCPO) has members in 60 countries and represents parents and their families worldwide – its mission is to improve access to the best treatment and care for all children with cancer in the world
• ICCCPO works closely with the International Society of Paediatric Oncologists (SIOP), forging a collaborative alliance between parents and health care professionals
• Parent organisations can be providers of strong emotional support for families of children with cancer. By working with professionals, they can also be powerful advocates to help improve the care of child cancer patients and their families
• Families who have dealt with cancer grow from the experience and become advocates for new families and for
improvements in treatment and care
• The International Childhood Cancer Day has been established to help raise awareness of and funds for childhood
cancer needs worldwide, and within each country
• The public can help by supporting the parent organisation(s) within their country
• 250,000 children get cancer in the world each year
• 70% of children with cancer survive – if properly treated
• 80% of children with cancer are not adequately diagnosed or treated
• As little as (US)$50 can be enough to buy drugs to treat a child with cancer
• Over 100,000 deaths from childhood cancer could be prevented each year if all children had equal access to diagnosis and treatment
• Under the UN Convention on the Rights of the Child every child has the right to:
- life
- treatment of illness
- rehabilitation of health
- education.
• Under the UN Convention on the Rights of the Child, working parents have the right to benefit from child-care
facilities and social security
• Survivors need support after treatment to reintegrate into society without discrimination (including education,
employment, insurance and support with long-term effects of cancer and its treatment)
• Families need support beyond physical completion of treatment, to help them reintegrate back into society
• The sibling relationship is normally the longest in anyone’s life – the impact of cancer can therefore be profound on brothers and sisters.
The Mesothelioma Website: http://www.mesotheliomaweb.org, has been one of the most comprehensive sites on asbestos and mesothelioma for over ten years, providing information and support to those who have been exposed to asbestos. Mesothelioma Web has achieved HON (Health On the Net) code approval; HON is a non-profit organization whose mission is to guide people to accurate medical information and expertise online and thereby to contribute to improved health care through patient empowerment and better informed health professionals.
Pleural mesothelioma center is the leading resource on asbestos exposure.
Pleural Mesothelioma Center - Pleural mesothelioma is by far the most prevalent form of mesothelioma. According to the American Cancer Society, three-quarters of all mesothelioma cases are pleural. Pleuralmesothelioma.com offers the most comprehensive and current information on asbestos exposure and mesothelioma.
Warning Signs for Childhood Cancer Prepared by the South African Children's Cancer Study Group
and sponsored by CHOC Childhood Cancer Foundation South Africa
In less developed countries, very few children receive effective treatment for Childhood Cancer.
One major reason for this is that many nurses (and even doctors), especially in primary health care clinics in rural areas, are not aware of the possibility that children may get cancer, and do not recognise the possible symptoms.
Also, if the disease is diagnosed at all, it is frequently at such a late stage and advanced illness as to make the prognosis for successful treatment very poor.
In an attempt to improve this situation, the South African Children's Cancer Study Group, which includes all of the specialist paediatric oncologists in the country, prepared a set of Warning Signs for Childhood Cancer.
The “St Siluan Warning Signs” have been accepted by SIOP for use in all developing countries.
“SAINT SILUAN” WARNING SIGNS FOR CANCER IN CHILDREN
(For guardians and primary health care providers in a developing country)
SSeek Medical help early for persistent symptoms I Eye White spot in the eye, new squint, blindness, bulging eyeball LLump Abdomen and pelvis, head and neck, limbs, testes, glands UUnexplained Prolonged fever over 2 weeks, loss of weight, pallor, fatigue,
easy bruising or bleeding AAching Bones, joints, back, and easy fractures NNeurological Signs Change or deterioration in walk, balance, or speech, regression of
milestones, headache for more than two weeks with or without vomiting, enlarging head
Some notes: - The list of the warning signs emphasises that persistent symptoms, which do not get better within 7-10 days with conventional therapy, should be referred for further investigations to specialist centres.
- Especially, patients with eye changes like “white spot” in the pupil of the one or both eyes, or “swelling” of the eyes that do not get better with eye drops, should be referred.
- Masses (lumps) anywhere on the body, that do not get better with ointment or antibiotics, should be investigated.
- Bleeding, pallor (anaemia), bruises that are unexplained should be treated with caution, and the patients should be referred for management as soon as possible.
- Children who have persistent bone, joint and back pains cannot be ignored.
- Any new abnormal neurological findings need urgent attention. Brain tumours are one of the more common malignancies of childhood.
- Children with haematological malignancies like leukaemia can have the above-mentioned “Unexplained” and “Aching” symptoms.
- A full blood count can often indicate suspicions of leukaemia, especially if there are abnormal cells (blasts) seen on the blood smear. Patients with blasts in peripheral blood should be referred immediately to a cancer centre.
IAPO calls on World Health Organization (WHO) member states to protect patients from counterfeit medical products
London, UK, 29 January 2009 - The International Alliance of Patient’s Organizations (IAPO) recently urged members of the WHO Executive Board and member states to protect patients from counterfeit medical products by taking action to promote awareness of the dangers they pose. This request was at the core of an intervention made by Jeremiah Mwangi, IAPO Senior Policy Officer, addressed to delegates at the 124th session of the WHO Executive Board in Geneva , Switzerland .
Counterfeit medical products pose a very real threat to the lives of patients worldwide, and are one of many threats to the quality and safety of medicines available to patients. IAPO believes that the prevalence and availability of counterfeit medical products highlights the gross inequity in access to safe and effective medical products that exists around the world.
To meet this challenge, numerous factors must be addressed, including weak regulatory systems, inability to afford essential medicines, lack of alternatives and a lack of information. Counterfeit medical products are a public health issue. Therefore, IAPO believes that WHO has a central role to play, bringing together relevant stakeholders, including other specialized UN agencies, who can tackle this threat.
In order to protect patients, IAPO made the following call to delegates: “In WHO and member states actions to protect the public from counterfeit medical products, we ask you to not only promote awareness of counterfeit medical products among health professionals, but also among patients so that they can be vigilant and report suspect medicines. IAPO believes that it is essential to take comprehensive and coordinated action to communicate the risks of counterfeit medical products to patients, and to keep patients safe.”
IAPO has prioritised the issue of counterfeit medical products as one of many patient safety issues that are a real danger to patients and, with other patients’ organizations, can make a substantial contribution to partnerships with other key stakeholders. In the role of information provider, IAPO has produced a toolkit for patients’ organizations which includes information to enable patients to identify potential counterfeit medical products and ensure that they acquire medicines that are safe and effective.
The International Medical Products Anti-Counterfeiting Taskforce (IMPACT) estimates that: “Many countries in Africa and parts of Asia and Latin America have areas where more than 30% of the medicines on sale can be counterfeit.” This demonstrates in stark terms the need for political commitment and the full energy of those global institutions, designed to protect and promote public health, to combat this problem. This critical public health issue must not be allowed to slip off the agenda.
******
Note to Editors:
On the 4th of December 2008, P.A.V.E.L. was assigned as ‘The most involved patients’ organization from Romania’at Gala SanatateaTV.
About P.A.V.E.L. Parents' House. In danger to be sold by owners!
This is the P.A.V.E.L. Parents' House from 1998 to 2009! In this space (a flat with 5 rooms), many ill children and families have recieved free accomodation, kind support, encouragement and councilling; this place brought 'fresh air', a smile - to many of them, mostly being people who were very down, financial, but also psychological. This is the single place in Romania who offers such of support to families with children ill of cancer. For many, living in this place was a really boost!
P.A.V.E.L. Parents' House was and is also a place for the parents' meetings, for survivors' meetings, for celebrations, for our office (the organization has not its own space); this place was visited and appreciated by many important people. There are many testimonials regarding the importance of this space.
This flat was rented free till now, but it is in danger to be sold soon by its owners, Kinderen in Nood, at the market price (meaning 4 times more than the initial price), because as they said: "After a period of 10 years economics went up, also in Romania . Even life has become a bit better since Romania joined the European Community and in the near future it will go up faster......And from this point of view we would like to sell the apartment and use the money for new purposes and make new people happy. We think after a period of time of 10 years your Foundation should stand on their own feet and look for international sponsorship, as you already did many times.......". This means a loss for so many people in need, families with children with cancer from Romania - who are in a very difficult psychological and financial condition or even much more.
Our organization can' t afford to buy this flat or other similar one (we have no state funding, depending solely by donations), our efforts being focused on keeping going with the direct programs for children and young people with cancer and their families. Therefore, we ask the support to all - to help us to not loose this space.
Testimonials for P.A.V.E.L. Parents' House
1. Dear Mrs Cridland,
Your message regarding the decision taken by the board of directors from Holland has filled our hearts with worry and sadness for the future of P.A.V.E.L. Association.
For more than ten years your organization has been for those struck by fate, for those struggling in an ocean of suffering and despair a true pillar which gave our faith and hope back.
I don’t believe there is any greater struggle than fighting for the life of your own child. It’s a cruel and exhausting fight, but the help, the moral support and the shelter we and so many other families got from The House of the Parents were truely priceless.
In these days of crisis the shocking news that they’ve decided to sell the flat has felt like a thunder storm to us and the reason they’ve given is quite strange to me. It’s rather because of the financial crisis, I would say. If they wish to expand the activities in other countries as well, I think they could find some other solutions rather than selling this flat. Why do they need to sacrifice Romanian families in need for the sake of other families in other countries especially after such a long and very efficient collaboration?
It’s true that Romania has made some progress in the economic area and that it’s an EU country, but prices have gone way up while salaries didn’t increase much, but anyway, these facts are irrelevant when it comes to families with very sick children. There hasn’t been much progress in Romanian medicine, thus the survival rate is very small, the medical system continues to be overwhelmed with cases they cannot deal with. By ending this collaboration, the Dutch Charity Foundation would make the P.A.V.E.L. Association office dissapear which is anything but humanitarian as it would be a great shock for these suffering families.
Do they know that in order to do a brain Pet-Scan we need to go to Germany or Holland as Romania and Hungary don’t have the necessary resources and that CNAS don’t cover the expenses as the E112 form shows (which I don’t understand either)?
If they’ve really decided to go on with this and if they think that Romanian children with severe diseases and their families have a care free life and if they really consider themselves to be a humanitarian organization, they could at least be kind enough to sell the flat to P.A.V.E.L. Association at the price they bought it, that is $ 41,000 – a sum I believe we could get without much trouble and that would mean that they indeed want the Association to continue its activity.
We truely hope that you find other sponsors, perhaps a phonecall or at least making this whole situation public would be very useful. Our mayor, being a doctor, may better understand the importance of your activities within the P.A.V.E.L. Association for helping these families.
Without the help and councilling for these families, the sick children are three times condamned – by fate, by traditional medicine (because, unfortunately, few are the ones to be rescued), and by the greatest burden, the hardship that parents have to struggle with, having no means to continue the fight.
God bless and may He help you in your mission and reward you for your unconditioned love and care, for your compassion towards our children and towards all of us.
Best wishes,
Liviu and Mirela Popa (parents of a girl from Costanța, who was sick)
12 December 2008
2. Letter to the P.A.V.E.L. Association members, sponsors and supporters
9 December 2008
Dear friends,
My name’s Luiza Dihoru, I’m Romanian and I’m a researcher at Bristol University in UK. I’ve found out about the P.A.V.E.L. Association accidentally during the summer of 2004 while I was looking for information about cancer on the Internet. As it’s happened with many people, I’ve found out about the Association under sad circumstances. My sister Cristina Popa had just had a breast cancer opperation. In the spring of 2006, my father, Valentin Dihoru, was diagnosed with prostate cancer, this adding to the worry and sorrow in our family.
As life usually proves it, life tragedies end up being true life lessons about oneself, ways for self discovery and ooportunities to encounter extraordinary people in extraordinary circumstances. Although the afore mentioned events have lead to many consequences for us, I would like to share with you a single one. It’s about our meeting Mrs Olga Cridland and the moral and mental support we received from the P.A.V.E.L. Association.
Between 2004-2006 my connection with the Association was purely long distance as I was a resident of Great Britain. However, the benefits I and my family recieved were numerous and of great importance. I then realized that the P.A.V.E.L. Association was the only organization (or perhaps one of the few) who was offering support and counseling to the families of people with cancer. In Romania, as far as I know, cancer is a subject too little discussed, and psychological support is fully neglected my the medical staff. The Association is for me a pioneer in the area of charity and a model of professionalism. I was impressed by how much the organization can offer regarding information and data about cancer, because as we all know, ‘information is power’, especially in this case. Learning about their illness and different ways of treatment offer the patients some idea of control in a situation which is hopeless and anything but under control.
The Association has offered us the latest information regarding cancer, contact details of organizations who deal with this issue, useful links of sponsors and of networks between sick people. All these things were extremely important for me and my family.
In the winter of 2007 my father was hospitalized for three weeks in Fundeni Hospital for rediation therapy. I was in UK but kept daily contact with my family by phone. The Association offered my family shelter in one of the Association’s rooms from Soseaua Fundeni, in Bucharest. For the poor people outside Bucharest, visiting their family members in the hospitals can pose a lot of difficulty. Even though my family never stayed in that flat, they knew there was always a shelter for them just in case. During those dark weeks for us the Association has been a beam of light for us. My father went to the Association office in the Oncological Institute where for the first time in months had gorgotten his despair. The couple of hours’ conversation with Mrs Olga Cridland have meant the world to him. The moral support he then got was deeply felt by the entire family. On a december evening in 2007, the Association sent me electronic pictures with my father in the hospital, smiling. This gesture has meant so much to me!
Sadly, I found out that the flat for the families with cancer members would be sold. I don’t know why this is happening but I would like to appeal to the people and institutions who can help the P.A.V.E.L. Association find another place for its activities. It’s important not to let this organization all alone in the difficult situation it is now. In Bucharest, there are many people coming from all over the country to get special care and treatment.
The finacial difficulty of finding a place to put up the families of the sick is tremendous. To the worry and anxiety you can add the physical weariness and finacial frustration of these families. The Association offers the possibility of hosting the family of children with cancer. This a kind and noble thing. Please, let’s not let it disappear!
Hoping that the humanitarian principles shall succeed!
Best,
Dr Luiza Dihoru
Faculty of Engineering
Bristol University
Great Britain
3. Stop the sale of the flat!
We were very sad to find out that the Dutch Organization which bought the flat wishes now to sell it, which is why we want to express our regret about their decision. In order to support the keeping of the flat we hereby include the following reasons:
We wish that the venue of the Association stays the same because it has meant so much for so many children with cancer: rest, treatment, moral, spiritual and medical support.
We kindly ask that the Association from Holland put themselves in the shoes of those troubled parents who come to Bucharest from hundreds of kilometres away with children with cancer. They should understand that these families need a house where to stay because hotels are too expensive. It often happens that they share the bed with their child in the hospital because of lack of space.
We’d like to kindly ask the Dutch organization not to think of Romania as an Western country because hotel prices are too high for the average people, especially for the families with sick children. So, please keep the flat and let it be used for the same purpose as it has been until now. The people who handled it have done a great job!
Because Christmas holidays are coming we want that love and compassion which represent the pillar of our faith make the representatives of the Dutch association keep the flat as their Christmas gift to the children with cancer from Romania.
Best wishes for the 2009 and may we find you in the same place!
Cristina and Lucia Constantin (member of the P.A.V.E.L. Association)
4. To the P.A.V.E.L. Association
We are Maricica and Constantin Anghelutã, we’re from Galati and we are Cristiana’s parents. We’ve been through a great difficulty. In July 2006 our girl was operated twice for a brain tumor in Bagdasar Hospital no 9 by prof.dr. Vladimir Ciurea and dr. Alexandru Tascu.
After the operation she was transfered at Fundeni Oncological Institute to prof.dr. Monica Dragomir for chemeotherapy and radiation therapy. This is where we found out about the House of the Parents in Soseaua Mihai Bravu 311-313, bl. SB 1, Sc. 1, ap. 1, Sector 3, Bucuresti. It was of great moral and financial support. This is where God introduced us amazying people with great soul, and to whom we are very greatful and wish all the best in their lives.
The staff have offered us great moral support, encouraging us, informing us and guiding us towards doctors and clinics specialized in treating oncological diseases. Even more, they’ve put us in contact with families who have had the same problems in order to find solutions to our situation.
The comfort in this house creates a nice atmosphere which helps us handle our problems better. Many times we’ve wondered how we would have managed without being offered this opportunity, but we never found the answer.
We end this letter only saying that we hope you understand how much good The House of Parents has brought to us and how essential it is to keep doing its activities. Which is why we thank Kinderen in Nood Foundation and to staff from the P.A.V.E.L. House of Parents for their help and we pray that our dear Lord give you health and may that the Christmas Spirit advices you to take the wisest decision.
Best wishes,
The Angheluta Family
5. We thank you that you were here for us and we pray that you keep going. You’ve been of great help to us. My child has done chemeotherapy at Marie Curie Hospital. He’s very much attached to me and to his father and he wanted us both to stay with him. Until we found out about about the P.A.V.E.L. Association my husband had slept in the car in the hospital yard for almost three months, and we bought food for the child from a restaurant close by – which was very expensive for us (perhaps some people don’t know that providing suitable nourishment for a child during chemo is very important and also very difficult. After we had found out about the Association, you put us up and since then it was all much easier. We could prepare food for our child every day , whatever he wished for, and my husband could finally lie down in a bed to rest. And after a while, when our little one had some frequent breaks from tratment, we would all go to the Association and thus we managed to forget for a little bit the worries and the hospital atmosphere; and it all went much better after that. To conclude (because in fact I could say much much more) you are a true necesstity for those who don’t live in Bucharest. We thank you for having been there for us and we hope that you are there for those children who will need you.
Best,
The Ghilescu Family (Constanta)
6. We are the Nenetu Family from Craiova
We had a little boy diagnosed with cancer and for us the House of Parents has meant a lot. It is here that we’ve found a very warm place, wonderful people who encouraged us when we were down and helped us to keep fighting. Mrs Olga encouraged us and helped us not to give up, but to keep fighting against the disease, the unreliable authorities and the decrease of faith. Mrs Mariana was like a mother for us who listened to us, who wiped our tears away, who soothened our pain with kind words. The fact that we didn’t have to pay was vital for me and Andrei because otherwise we couldn’t have been able to cope with the lack of financial possibilities. We thank the wonderful people who made this possible and I hope you don’t take this chance away from other children and parents who need this kind of help. (And I don’t think I exagerate when I say that.)
We thank you for taking the time to read this, we wish you A Happy New Year!!
Best,
Mihaela and Marian Nenetu from Craiova
31 December 2008
About the role of Vitamin B17 in cancer. Alternative treatment.
The purpose of this movie is to show that this great human tragedy can be stopped now entirely on the basis of existing scientific knowledge. The information you are about to watch marshals the evidence that cancer is a nutritional-deficiency disease, like scurvy or pellagra. It is not caused by a bacterium, virus or mysterious toxin, but by the absence of a substance that modern man has removed from his diet. That substance is Vitamin B-17, also known as Amygdalin or Laetrile. If that analysis is correct, then the treatment and prevention of cancer can be made simple. All that needs to be done is to restore that easily obtained and inexpensive food factor to our daily meals. An increasing number of doctors all over the world are now are testing and proving in their own clinics that the vitamin concept of cancer is true.
Vitamin B17 As a Preventative
Vitamin B-17 is one of the main sources of food in cultures such as the Eskimos, the Hunzas, the Abkasians and many more. Did you know that within these tribes there has never been a reported case of cancer? According to Dr. Krebs, we need a minimum of 100 mg of vitamin B-17 (the equivalent of about seven apricots seeds) too nearly guarantee a cancer free life. Foods that contain vitamin B-17 are as follows:
KERNELS OR SEEDS OF FRUIT: The highest concentration of vitamin B-17 to be found in nature, aside from bitter almonds. Apple, apricot, cherry, nectarine, peach, pear, plum, prune.
BEANS: broad (Vicia faba), burma, chickpeas, lentils (sprouted), lima, mung (sprouted), Rangoon, scarlet runner.
NUTS: Bitter almond, macadamia, cashew.
BERRIES: Almost all wild berries. Blackberry, chokeberry, Christmas berry, cranberry, elderberry, raspberry, strawberry.
SEEDS: Chia, flax, sesame.
GRASSES: Acacia, alfalfa (sprouted), aquatic, Johnson, milkweed, Sudan, minus, wheat grass, white dover.
GRAINS: oat groats, barley, brown rice, buckwheat groats, chia, flax, millet, rye, vetch, wheat berries.
MISCELLANEOUS: bamboo shoots, fuschia plant, sorghum, wild hydrangea, yew tree (needles, fresh leaves).
Two rules of thumb: According to Dr. Krebs, the basic concept is that sufficient daily B-17 may be obtained by following either of two suggestions:
First, eating all the B-17-containing fruits whole (seeds included), but not eating more of the seeds by themselves than you would be eating if you ate them in the whole fruit. Example: if you eat three apples a day, the seeds in the three apples are sufficient B-17. You would not eat a pound of apple seeds.
Second, one peach or apricot kernel per 10 lbs of body weight is believed to be more than sufficient as a normal safeguard in cancer prevention, although precise numbers may vary from person to person in accordance with individual metabolism and dietary habits. A 170-lb man, for example, might consume 17 apricot or peach kernels per day and receive a biologically reasonable amount of Vitamin B-17.
And two important notes: Certainly, you can consume too much of anything. Too many kernels or seeds, for example, can be expected to produce unpleasant side effects. These natural foods should be consumed in biologically rational amounts (no more than 30 to 35 kernels per day).
High concentrations of B-17 are obtained by eating the natural foods in their raw or sprouting stage. This does not mean that moderate cooking and other tampering will destroy the B-17 content. Foods cooked at a temperature sufficient for a Chinese dinner, for example, will not lose their B-17 content. http://www.worldwithoutcancer.org.uk
Medical Center NOVA VITA, Serbia
The special hospital for internal medicine is established in order to provide high standards of health care, that is, the application of the latest medical technology in the treatment of malignant and chronic internal diseases.
The in-patient hospital provides the accommodation, care and treatment of patients within the following departments:
Oncology and hematology department
Department for internal diseases
pulmonology
cardiology
gastroenterology
endocrinology
nephrology
allergology
gerontology department with prolonged care and treatment ( elderly persons with the chronic - internal diseases)
department for the professional diseases (persons exposed to the toxic substances at work or other places)
department for the post-surgical care and rehabilitation
INTENSIVE CARE DEPARTMENT with 6 beds, equipment, trained personnel and pharmacotherapeutical support provides excellent health care of serious patients and stabilisation of their vital functions through continuous monitoring.
Different approach in the treatment of malignant diseases, what this mean?
Tumor is a group of cells that are splitting in an uncontrolled way. Tumor cells are parasites which take away the nourishment, oxygen, minerals and vitamins of the healthy cells in our body. They disable healthy cells in the body from functioning. For their fast growth, they are spreading easily on the surrounding cells or moving through body liquids in the remote organs and that way they are creating new types of neoplasm and metastases. In that case, we can talk about extensive malignant disease.
Tumors can extend to the vital organs, like liver, lungs, brain and bones. They cause imbalance in the healthy cell function and weaken the organism in general.
The tumors are most frequently classified in benign and malignant types.
There are between 500 and 1000 malignant cells in the healthy organism. Our natural immune mechanism eliminates these cells. A pathological mutation in the DNA, which can occur at the cell level, creates the imbalance that can provoke tumor.
The exposure to the chemical substances, irradiation, as well as genetic predisposition may contribute to the progression of malignant disease.
Doctors use the term stage to indicate the rate of tumor's progression and its size.
Different approach: Our hospital is the only private institution in this area that offers a hospital treatment to the oncologic patients. In addition to the standard medical chemotherapy and radiotherapy, our clinic is the only one which applies the therapy of non-specific immuno stimulators. The synergetic effect of this approach led us to better results in the treatment of malignant diseases. The team of our experts exchanges experiences with the experts from all over the world. We cooperate with the physicians from Italy, Germany and France.
Anticancer: A New Way of Life David Servan-Schreiber
This is an international bestseller by David Servan-Schreiber, a noted expert (professor at Stanford University) and author whose other works have included Living Beyond Limits and New Hope for Facing Life-Threatening Illness.
Though the author states in his introduction that "to date, there is no alternative approach to cancer that can cure the illness," he also urges people who are battling with cancer to try other approaches and not to "neglect the natural capacity of our bodies to protect against tumors." In his own life and career, Servan-Scgreiber has gone from a purely technical physician to one who encourages and explores alternative medicine. He talks frankly (and positively) about his own experience with a brain tumor and goes on to examine the research on the types of people who survive cancer and live on for long spans of time: what do they do, how are they different, from those who quickly succumb? It would seem to be the case that some people passively accept their diagnosis and other "mobilize their own natural defenses."
Diet is one means of defense against cancer, and the other is "everything that contributes to reducing inflammation." These two lines of defense are to be pursued while accepting conventional therapies such as chemo that have a proven record of conquest and cure.
The author lists a number of effective anti-cancer foods, foods that we can consume now, and foods that will help us if we do develop tumors. Green tea (with a preference for Japanese varieties), turmeric, curry and ginger (the latter also helps alleviate the nausea associated with chemotherapy), cruciform vegetables like cauliflower and broccoli, garlic (a natural antibiotic), yellow veggies rich in carotenoids, which have been shown to reduce the growth of cancerous cells. Soy (in food form) has been shown to assist in the prevention of breast cancer; statistically, Asian women have a lower incidence and eat soy products regularly. Eat citrus and berries and drink pomegranate juice. And perhaps the best news - dark chocolate contains antioxidants - but the benefit is canceled when chocolate is mixed with dairy products. Select chocolate with at least 70 percent cocoa and consume a little every day.
Researchers believe that people who develop cancer have a "type C" personality. They absorb guilt and loss until they finally "sink." It is as though they were always expecting to develop the disease and when it comes, it seems like a form of retribution or a natural repetition of sorrows and shocks they have been dealing with on a small scale all their lives. Many tend to simply yield to the inevitable as they have yielded so many times before to the blows that life has dealt them. Experiments indicate that other people, a minority, feel the urge to resist the sense of helplessness that cancer engenders, while most simply are accepting their fate. The survivors are a rarer breed, those who decide to fight back.
Having a support group helps. The diagnosis of a life-threatening illness is a severe trauma and may relate back to other traumas that the patient has endured; some people may expect cancer, may secretly long to be punished and eliminated for perceived sins in their past. Talking about the fear of what lies ahead can help to make the next steps easier and can be a recuperative tool. Shamans, the author points out, base their healing on rekindling the life force. Many cancer patients develop the determination to gather their own inner forces to combat the disease. To do so, they have to overcome fears that afflict all of us - the fear of leaving our children and other loved ones, the fear of pain, of being alone, of being a burden, and of course, the fear of the unknown journey that is death.
Servan-Schreiber discusses the difference between "false hope" and a reasoned, defensive active approach to cancer survival. You can't expect to survive cancer if you insist on going on doing exactly as you did before your diagnosis, if you smoke, if you avoid testing or treatment that will help you. In order to move forward toward survival, you have to take strong positive measures to change your life in order to preserve your life. The author states, "The best protection against cancer is a change in attitude arising from a process of growth valued by all the great psychological and spiritual traditions." Embedded in that attitude are strength, insight, and gratitude. http://www.curledup.com/anticncr.htm
UICC Strategic Advisory Panel
Association P.A.V.E.L., member of UICC, has joined UICC Strategic Advisory Panel, following the invitation made by the new President of UICC, Prof. Dr. David Hill.
'Dear colleagues, 28 October 2008
On behalf of David Hill , President of UICC, it is my pleasure to invite you to be a member of the UICC Strategic Advisory Panel. Members of the panel have been appointed because of their expertise and their working knowledge of UICC and its member organisations. The purpose is to advise the President and Executive Director on strategic issues by providing an informed network capable of rapid response to consultation.
They will not meet face-to-face as a group but will work by e-mail.
By joining the panel, members agree to:
· be available for consultation and advice on strategic issues by e-mail)
· be of assistance in identifying qualified experts from around the world.
· represent UICC at events or functions as appropriate
· brief the President and UICC about events in which they are involved which touch upon the mission of UICC
The appointment is for two years from October 2008 until August 2010.
We look forward to receiving your response.
Best wishes,
Isabel Mortara
Executive Director
International Union Against Cancer (UICC)'
World Cancer Declaration advisory
25 September, 2008
Our warm thanks to all of you who participated in the World Cancer Congress 2008. As you know, the World Cancer Declaration was one of the most important elements in the congress.To date, 467 organizations and 1442 individuals have signed the declaration, and the number is growing daily. We have posted a new-look PDF of the declaration on our website (http://www.uicc.org/templates/uicc/pdf/wcd2008/cta.pdf). Print copies are available on request. Our task now is to act together, and to advocate for action, to achieve the 11 ambitious targets set out in the declaration. The UICC is working on a plan of action to encourage maximum involvement by our members and partners, and we expect to circulate this within a few weeks. The Global Cancer Control Community will offer its members a four-week "Ask the expert" discussion on the World Cancer Declaration. The special discussion, presented in collaboration with the European Society of Oncology, will focus on the four areas for priority action and will lead up to ESO's e-grandround on the declaration on 13 November (see below). See http://www.uicc-community.org/
We congratulate the Lance Armstrong Foundation on its new global cancer initiative, which includes the World Cancer Declaration as an integral part, and offers visitors to the foundation's website the opportunity to sign the declaration. See http://www.livestrong.org/
And we thank the European School of Oncology, which has announced an e-background on the declaration. The live online discussion with Dr Franco Cavalli, UICC's immediate past president, and Kathy Redmond, editor of CancerWorld, will take place on 13 November. For further information, see http://www.eso.net/esonet/eventDetail.aspx?id_sito=1&id_stato=1&id=2126&selection=1
These are just two examples of how member organizations are helping us to move the World Cancer Declaration forward. We hope there will be many more.'
Fungus Causing Cancer -- A Novel Approach to the Most Common Form of Death Cancer is now the leading cause of death in the United States. This video featuring Doug Kaufman interviewing Italian Oncologist Dr. Tullio Simoncini, details a new theory of cancer that carries the promise of a safe, speedy, and effective cancer cure.
Hollywood legend Paul Leonard Newman has lost his battle against cancer. He died on Friday aged 83.
Jeff Sanderson , his publicist, said the star, who was nominated for Academy Awards 10 times and won an Oscar in 1987 for his role in The Colour of Money, died after a long battle with cancer at his farmhouse near Westport, Connecticut. He was surrounded by his family and close friends.
Newman appeared in some 60 movies, including Cat on a Hot Tin Roof, The Hustler, Butch Cassidy and the Sundance Kid and The Sting. Famed for his philanthropy as well as his acting, Newman was married to Oscar-winning actress Joanne Woodward for more than 50 years, and had successful side careers as a racing driver and creator of a line of food products, Newman’s Own, that bore his name and face on their labels.
The Newman’s Own Foundation took profits (over $250 million) from that company to sponsor numerous charitable organisations. Newman also founded 20 years ago his Hole in the Wall Camps, which provided fun summer breaks for children around the world suffering from life-threatening illnesses.
Newman was born in a Cleveland suburb on January 26, 1925, and was a Navy radio man in the Pacific during World War Two.
Afterwards, he went to Kenyon College in Ohio on a football scholarship, but took up acting after being cut from the team because of a bar-room brawl.
After his father’s death, Newman helped run the family sporting goods store before heading to the Yale Drama School. He ended up in New York, finding bit parts in TV and a Broadway role in Picnic in 1953. His first big film role was portraying boxer Rocky Graziano in Somebody Up There Likes Me.
He went on to become one of the world’s most enduring and popular film stars, a legend held in awe by his peers. He had big roles in more than 50 movies, including Exodus, Butch Cassidy and the Sundance Kid, The Verdict, The Sting and Absence of Malice. In doing so he worked with some of the greatest directors of the past half century, from Alfred Hitchcock and John Huston to Robert Altman, Martin Scorsese and the Coen brothers.
His co-stars included Elizabeth Taylor, Lauren Bacall, Tom Cruise, Tom Hanks and, most famously, Robert Redford, his sidekick in Butch Cassidy and The Sting.
With his strong, classically handsome face and piercing blue eyes, Newman was a heartthrob just as likely to play against his looks, becoming a favourite with critics for his convincing portrayals of rebels, tough guys and losers. “I was always a character actor,” he once said. “I just looked like Little Red Riding Hood.”
Newman had a soft spot for underdogs in real life and, as well as his acting legacy, dedicated much of his life to charity work. Robert Forrester, vice chairman of Newman Own, the foundation founded by the actor in 1982, said: “Paul Newman’s craft was acting. His passion was racing. His love was his family and friends. And his heart and soul were dedicated to helping make the world a better place for all.
“Paul had an abiding belief in the role that luck plays in one’s life, and its randomness. He was quick to acknowledge the good fortune he had in his own life, beginning with being born in America, and was acutely aware of how unlucky so many others were. True to his character, he quietly devoted himself to helping offset this imbalance.”
Forrester said Newman’s work had raised $250 million and helped thousands of children worldwide suffering from life threatening conditions with his 11 Hole in the Wall camps.
“He saw the Camps as places where kids could escape the fear, pain and isolation of their conditions, kick back, and raise a little hell,” added Forrester.
“Through the Camps, well over 135,000 children have had the chance to experience what childhood was meant to be.” http://entertainment.timesonline.co.uk/tol/arts_and_entertainment/film/article4837158.ece
Canadian scientists launch massive cancer study
Historic, $100-million project will track 300,000 people for up to 30 years in effort to discover what causes the disease CARLY WEEKS
From Thursday's Globe and Mail
June 12, 2008 at 4:54 AM EDT
Canadian researchers are embarking on a groundbreaking, $100-million project that will track 300,000 Canadians for up to 30 years in an effort to unlock critical secrets about the causes of cancer and how it can be prevented.
The largest study of its kind yet undertaken in Canada, it will collect information on people's lifestyles, environments and genetic makeup, giving researchers an enormous pool of information to help explain the development of the mysterious disease.
"By following average Canadians over this period of time, you'll be able to determine ... what makes some people stay healthy and others develop cancer and other chronic diseases," said Heather Bryant, vice-president of cancer control for the Canadian Partnership Against Cancer, a federally funded organization helping to lead the study. "[It] will yield benefits for generations to come."
Researchers from across the country and around the world will be able to use the information to explore hypotheses about the links between cancer and environmental or genetic factors. For instance, scientists could use the project's massive store of blood samples to examine whether people who live in areas with little sunshine and have low levels of vitamin D are at a greater risk for certain cancers.
"As you go forward, you can get this richer and richer understanding of people's exposure and you can actually develop more questions as potentially more environmental or other causes are understood," Dr. Bryant said.
CPAC, along with other cancer organizations representing various regions of the country, officially launched the project yesterday and hopes to start the recruitment phase by the end of the year. The study is based on an Alberta project that has 30,000 participants and has been running for several years.
"This new initiative is the first of its kind in the world, and I congratulate CPAC for undertaking a study that will more closely examine the causes of cancer," Health Minister Tony Clement said in a news release. The federal government is providing $42-million to CPAC to help fund the work.
Instead of canvassing for volunteers, researchers will recruit people at random, ensuring the participants represent a cross-section of the country. In the Alberta study, participants were recruited by a random phone-dialling system, a method that may be used for the larger study in the coming months, Dr. Bryant said.
The project is expected to include 40,000 people in British Columbia; 50,000 in Alberta; 150,000 in Ontario; at least 30,000 in Quebec; and 30,000 in Atlantic Canada.
Participants must be between 35 and 69. People who have already had cancer, other than non-melanomatic skin cancer, will not be eligible. That's because the study will focus on the factors that could lead to the development of cancer throughout a person's life, rather than look retrospectively at the possible causes in those who have had the disease.
This type of study is considered the gold standard of population-based medical research because it recruits healthy people and follows them throughout their lives. Other studies often look at people after they have been diagnosed with cancer and must rely on patients' sometimes faulty memories of their lifestyles or environments.
The Canadian project's concept is similar to that of the Framingham Heart Study in the United States, which began in 1948 and is still tracking residents of the Massachusetts town after which the study was named. That research has led to major breakthroughs and has uncovered significant risk factors associated with heart disease, stroke and other cardiovascular problems.
Participants in the Canadian cancer study will be asked to provide blood and possibly saliva samples. They must also answer detailed questionnaires on a continuing basis, supplying personal information such as what they eat, how often they exercise, whether they take vitamins, and possibly even their past addresses.
Marnie Mastel, 62, has been participating in the Alberta study since 2004 and said it is rewarding to know that information from her life could eventually help lead to a breakthrough in the fight against cancer.
"They'll follow me until I'm 85, and I just think it's really neat," said Ms. Mastel, who works full-time as a receptionist and bookkeeper for her husband, an executive recruiter. "Eventually, something is going to click. They're going to find out what you could or should or didn't do that maybe would stop someone from having cancer. ... You never know who it could help."
While the study will focus primarily on cancer prevention, the rich collection of information will enable researchers to learn about potential links to cancer in lifestyle, environment, genetics and chronic conditions such as diabetes and heart disease.
Dr.Danalache Bogdan Alexandru
Faculty of Medicine
Universite de Montreal
CHUM, Hotel-Dieu,
3850 St-Urbain St, 7-134
Montreal, Qc, H2W 1T8
Canada
Lab. of Cardiovascular Biochemistry Pav. Jeanne-Mance - 7133,
Phone: 1 514-890-8000, Ext. 14615 danalache@gmail. com
Draft World Cancer Declaration 2008 A call to action from the global cancer community
A worsening global crisis
1. Cancer kills more people than AIDS, TB and malaria combined, and the death toll is set to rise dramatically over coming decades unless concerted action is taken now. In the few years since the start of the 21st century, cancer has already cost almost as many lives as the whole of World War II – the single deadliest conflict the world has ever seen. The global cancer burden is increasing rapidly with growth driven largely by the ageing of the world’s population. By 2030 it is estimated that over 12 million people will die of this disease every year. More than 70% of these deaths will occur in low- and middle-income countries, where resources available for cancer control are limited or nonexistent.
2. Although there are significant differences in cancer burden, mix and trend across the world, the rapidly increasing cancer burden affects all the world’s populations – not just high-income countries. Currently, cancer is the second leading cause of death in developed countries and the third leading cause of death in the developing world. In affluent countries, despite increasing incidence, cancer survival rates are rising
because more cancers are detected early and treated appropriately. In stark contrast, incidence and mortality rates are rapidly increasing in less affluent countries but there has been no significant improvement in survival.
3. Cancer deprives families of caregivers and income earners. It causes appalling suffering and often spells economic ruin, as families sink all their resources into paying for treatment that is often inappropriate and delivered too late.
4. Millions of lives that could be saved will be lost unless action is taken to raise awareness about cancer, galvanize political leadership, and develop practical strategies. Most countries have neither the strategy nor the political will to tackle cancer – few even know how many of their citizens are affected.
5. There are significant weaknesses in the global response to cancer. The global health community, which has a huge influence over national priority setting and resource allocation, has for decades focused almost exclusively on infectious diseases.
Consequently, the world is poorly prepared and ill equipped to confront this impending disaster.
The challenges faced
6. In 2005 the World Health Assembly adopted a resolution on cancer prevention and control that calls on member states to intensify action against cancer by developing and reinforcing cancer control programmes. However, too many countries have failed to fulfil their pledge to deal with cancer as an important public health priority by implementing a comprehensive national cancer control programme.
At the World Cancer Congress in Washington DC in July 2006 the global cancer community united behind a call for urgent action to deal with the worldwide cancer crisis by launching the first World Cancer Declaration, which outlines the steps needed to begin to reverse the global cancer crisis by 2020. The Declaration is a tool, regularly revised, to help cancer advocates bring the growing cancer crisis to the attention of health policymakers at a national, regional and global level. It represents a consensus between foundations, national and international non-governmental and governmental organizations, professional bodies, the private sector, academia and civil society from all continents that are committed to the vision of eliminating cancer as a major threat for future generations. The World Cancer Declaration builds on Charter of Paris, which was the first effort to mobilize the global cancer community to address the growing cancer crisis worldwide.
7. Despite the marked improvement in the proportion of the world’s population covered by global cancer incidence data, information on the number of people living with and dying from cancer is unavailable for many of the world’s population. Without comprehensive data, it is difficult to convince policymakers to make the investment necessary to tackle cancer and to measure the impact of cancer control activities.
8. Tobacco use – the single largest preventable cause of cancer in the world today – is increasing in the developing world, and remains a major global problem. The WHO Framework Convention on Tobacco Control (FCTC) was adopted by the World Health Assembly in 2003, but only about one in five countries has fully implemented any of the six key tobacco control strategies from the FCTC at a level that provides full
protection for their populations. Only 5% of the world’s population is covered by comprehensive smoke-free laws.
9. Unhealthy diet, excessive alcohol intake, physical inactivity, and exposure to occupational carcinogens all cause cancer. Obesity rates are rapidly increasing, even in countries where most of the world’s hungry live. Alcohol consumption is also increasing, with most of this increase occurring in developing countries.
10. One fifth of all cancers are due to chronic infection caused by the hepatitis B virus (HBV), human papilloma virus (HPV), Helicobacter pylori, liver fluke, schistosomes and human immunodeficiency virus (HIV). While vaccines are available against both HBV, vaccination coverage is poor or non-existent in most of the worst affected regions. Vaccines for HPV have been approved in many countries; however, few
countries have established a comprehensive vaccination programme. This is particularly problematic in the developing world where 80% of cervical cancer cases occur.
11. Public and professional ignorance about cancer warning signs, limited availability of early detection programmes, and a shortage of trained health professionals means cancers that might be curable if treated in time are often detected too late.
12. Across the globe there are enormous inequities in access to potentially curative treatments, rehabilitation and palliative care. Financial constraints, poor infrastructure, and lack of knowledge about how to develop cancer services for diverse cultural, socio-economic and geographic settings hinder the development of services that are equitable and economically sustainable. These limitations mean that
a large number of patients do not have access to acceptable levels of cancer care, not even palliative care.
13. The global shortage of health workers has a significant impact on the provision of cancer control services. Health workers are inequitably distributed throughout the world, with severe imbalances between developed and developing countries and even within countries. Sub-Saharan Africa faces the severest health workforce crisis. The migration of health workers, either spontaneously or through recruiting practices,
from low- and middle-income countries to high-income countries has exacerbated this problem.
14. Underuse of opioids condemns millions of cancer patients to suffer unnecessary pain.
Currently, around 90% of global morphine use is in Europe and North America. In many developing countries access to opioid analgesics is extremely low or nonexistent. Barriers to access include lack of knowledge and skills in pain management, negative public attitudes, economic constraints and regulatory impediments.
15. Investment in independent cancer research and clinical trials networks that can provide guidance on the best ways to improve cancer outcomes in economically, socially and culturally diverse settings is sub-optimal. Moreover, the evidence on cancer control measures that is currently available is not applied in a timely manner.
Concerted action can make a difference
16. Cancer may never be wiped out completely, but there is much that can be done to reverse the escalating toll of suffering and death. A significant number of cancers can be prevented – primarily through reducing tobacco and alcohol consumption, decreasing exposure to occupational and environmental carcinogens, the
implementation of vaccination and screening programmes and promotion of healthy diet and physical activity. Many cancers, including some childhood cancers, can be cured if detected early and treated appropriately. Patients with cancers that cannot be cured can be treated palliatively to minimize their suffering and helped to die with dignity.
17. Significant efforts have been made in recent years to reverse the growing cancer crisis and growing evidence is available on what can be achieved through concerted action.
For example:
a) The Framework Convention on Tobacco Control, the world’s first international public health treaty, has been ratified by 154 countries worldwide and efforts to combat tobacco are beginning to reap public health benefits in countries that have introduced and enforced comprehensive smoke-free legislation.
b) The Bloomberg Foundation has made USD 125 million available to create a partnership devoted to reducing dependence on tobacco around the world.
c) Action by the Global Alliance for Vaccines and Immunizations (GAVI) has helped improve hepatitis B coverage in many countries.
d) The Programme of Action for Cancer Therapy (PACT) was created by the International Atomic Energy Agency (IAEA) in 2004 in response to the developing world's growing cancer crisis, with the aim of helping developing countries build a comprehensive, sustainable cancer control programme. PACT, in collaboration with UICC, WHO and others, has launched six pilot projects within an evolving publicprivate partnership in Albania, Nicaragua, Sri Lanka, Tanzania, Vietnam and Yemen.
e) UICC launched the World Cancer Campaign in 2005 to scale up public and political awareness of the fight against cancer. The "My child matters" initiative is the largest and most comprehensive childhood cancer programme in low- and middleincome countries, funding 26 pilot projects in 16 countries. "Today's children,
tomorrow's world" is a five-year cancer prevention programme (2007-2012) focused on children and their parents.
f) Since 1999 the Alliance for Cervical Cancer Prevention (ACCP) has conducted field assessments and comparisons of pre-cancer screening and treatment methods in over 20 countries. The ACCP partners, which include EngenderHealth, the International Agency for Research on Cancer (IARC), UICC, IAEC, the Pan-
American Health Organization (PAHO), PATH and Partners in Health, have been energetic advocates for cervical cancer screening for all women and have published over 100 fact sheets, training manuals, and white papers. The ACCP is supported by the Bill & Melinda Gates Foundation.
g) UICC has developed a handbook containing evidence-based strategies to reduce the cancer burden for use by civil society and NGOs. This booklet is easily adapted to the reality in different countries.
h) According to the International Narcotics Control Board, some governments have recently changed legislation or policies governing opioid availability. This has made it easier for cancer patients to gain access to the medication they need to control their pain.
Call to action
We the global cancer community call on governments, international governmental organizations, the international donor community, development agencies, the private sector and all civil society to take immediate steps to slow, and ultimately reverse, the growth in deaths from cancer, by committing to the goals and targets set out below and providing resources and political backing for the priority actions needed to achieve them.
2020 goals
By 2020
1. sustainable delivery systems will be in place to ensure that effective cancer prevention, early detection, treatment and palliative care service is available in all countries
2. the measurement of the global cancer burden and the impact of cancer control interventions will have improved significantly
3. global tobacco consumption, obesity and alcohol intake levels will have fallen significantly
4. populations in the areas affected by HPV and HBV will be covered by universal vaccination programmes
5. many more cancers will be diagnosed when localised through the provision of appropriate screening programmes and high levels of public and professional awareness about significant cancer warning signs
6. access to appropriate cancer treatment, rehabilitation and palliative care will have improved significantly for all patients worldwide
7. many more cancer patients in pain will have access to effective pain control measures
Intermediate targets
To achieve the above goals by 2020, it is necessary to increase progressively
1. the number of countries with comprehensive national cancer control policies in place that take account of local priorities and realities and include dedicated budgets to ensure implementation
2. the number of countries with cancer surveillance systems in place
3. the number of countries with well-targeted initiatives to raise public and political awareness about the different factors that increase cancer risk and the measures that need to be deployed to reduce cancer risk
4. the number of countries that have ratified the WHO Framework Convention on Tobacco Control and fully implemented the six key tobacco control policies outlined in the documents
5. the number of countries with HBV and HPV vaccination and cervical cancer screening coverage of at-risk populations
6. the proportion of cancers that are detected when localised through the provision of screening programmes, where relevant, and through heightened public and professional awareness of significant cancer warning signs
7. the number of cancer patients with access to appropriate treatment, rehabilitation and palliative care in adequately equipped treatment facilities
8. the number of health professionals with specialist training in cancer prevention, detection, treatment and care
9. the number of cancer patients in pain worldwide that have access to effective pain control
Priority actions
To achieve the 2020 goals and the intermediate targets, priority actions need to be implemented to tackle cancer on many fronts.
Health policy
1. Place cancer on the development agenda. Increase the political priority given to cancer by demonstrating that a country’s investment in dealing with its growing cancer problem is an investment in the economic well-being of the country.
Organizations concerned with cancer control should work with the global donor community, development agencies, the private sector and all civil society to invest in cancer control
2. Mobilize stakeholders to ensure that strategies to control cancer globally are targeted at those who are most in need. Involve all major stakeholder groups in the development, or updating, of national cancer control policies
3. Define strategies that can begin to bridge existing cancer surveillance gaps Cancer prevention and early detection
4. Raise awareness about the need for culturally sensitive cancer risk reduction education campaigns, as well as public and professional education about cancer warning signs. Encourage governments to implement policies that will enable individuals to adopt risk-reducing behaviour and make more informed consumption
and lifestyle choices
5. Increase efforts to reduce tobacco consumption by encouraging governments to fully implement and enforce the six key tobacco control measures of the FCTC that have been shown to be successful
6. Undertake actions to ensure that vaccines and other strategies that are shown to prevent cancer-causing infections are made more widely available.
7. Advocate for the provision of affordable screening programmes for which there is evidence of efficacy in the population in question. Undertake pilot projects to that are designed to evaluate the feasibility and efficacy in populations in which the screening technology has not yet been tested.
Cancer treatment
8. Promote the development and use of cancer treatment guidelines that are relevant to local needs and resources. Ensure that sufficient treatment, rehabilitation and palliative care facilities and well-trained staff are available to meets the needs of patients with cancer. Take steps to tackle the many barriers to optimal pain control.
Work with the pharmaceutical industry to increase access to essential cancer medicines and immunological agents (e.g., vaccines) that are affordable and of assured quality.
9. Increase the number of health professionals with expertise in cancer prevention, treatment and care by providing specialist training opportunities for doctors and nurses. Raise awareness about the impact of health worker migration on the ability of countries to provide adequate levels of cancer care and work collectively to address global and national health workforce shortages and the resultant deepening of
inequity.
Cancer research
10. Increase investment in independent basic and applied cancer research and accelerate the translation of the research findings into clinical practice.
Monitoring progress
11. A report on progress towards achieving the intermediate targets set down in this Declaration will be presented at each World Cancer Congress, which is held every two years.
International Childhood Cancer Day 15 February 2008
Photo reportage (2008) realized at M.S.Curie Hospital, the oncology pediatrics ward, from Bucharest, by Cristian Movila, Romanian photograph
Only 100% smoke-free environments protect your children and family from the very serious health problems that breathing second-hand smoke causes.
Do not allow anyone to smoke in your home. Demand that all indoor public places be 100% smoke-free.
Around 700 million children - almost half of the world's children - breathe air polluted by tobacco smoke, particularly at home. On 4 February 2008, World Cancer Day will direct a simple message to parents: "Second-hand smoke is a health hazard for you and your family. There is no safe level of exposure to second-hand smoke. Give your child a smoke-free childhood."
I love my smoke-free childhood" appeals to adults and parents to recognize that there is no safe level of exposure to second-hand smoke and to actively support smoke-free environments for children. It calls on parents and other caregivers to advocate for and provide a safe and healthy environment for children. It is an encouragement for parental responsibility, not a constraint on personal freedom. It recognizes the fundamental right of children to breathe clean air.
For parents:
There is no safe level of exposure to second-hand smoke.
Because you care, protect your children from second-hand smoke
Teach children to stay away from second-hand smoke
Avoid smoking or allowing others to smoke in your home or car, even when your children are not there
Do not smoke while pregnant or in the vicinity of someone who is pregnant
Use a smoke-free day care centre,
Keep your children away from restaurants or other indoor public places that allow smoking
If you are a smoker, ask your doctor what you can do to stop
Become a role model for your child - do not smoke
Beginning with 2003, the day of 15th February is considered the International Childhood Cancer Day (ICCD).
Events concerning this occasion may be run for up to a month around this date. The purpose of the International Childhood Cancer Day is to:
* help educate the public about childhood cancer;
* support local fund-raising by members of ICCCPO (the International Confederation of Childhood Cancer Parent Organizations);
* provide international sponsorship of ICCCPO.
Also, to promote the work of local parent organisations
Date: - International Childhood Cancer Day is held on the 15th February each year.
- Fundraising and media events held throughout February.
At the end of the year 2005, in Romania there were registered 354,572 cancer patients, 4,467 being children with age bewteen 0 and 14 years old. There are 55,000 new cancer patients diagnosted each year (incidence rate is 252 people with cancer at 100,000 people), from whom 165 are under 14 years old.
In Romania, the average rate of recovery of these children is about 30 to 60%, in function of the specific of disease.
Till 2007, P.A.V.E.L. Association was the single parents' organization from Romania, whose children have cancer and one of few cancer patients' organization country, who work for cancer patients.
Childhood cancer facts
Childhood cancer is rare, but highly treatable
Each year, more than 160,000 children are diagnosed with cancer and approximately 90,000 die of cancer.
Childhood cancer is relatively rare
In the 1990s, age-standardised incidence rates were 140 per million for European children (0–14 years); ASR rates for the 52 countries in the 1998 IARC study on the international incidence of childhood cancer have a rough average of 120 per million.
Childhood cancer responds well to prompt and effective treatment
In the USA, childhood cancer was almost uniformly fatal before the mid-1960s, but survival rates improved to 55% in the 1970s and better than 75% in the 1990s.
In Europe, 5-year survival rates improved from 44% for children diagnosed in the 1970s to 64% for children diagnosed in the 1980s and 74% for children diagnosed in the 1990s.
Improved survival rates are largely due to better treatment and improved quality of care. Chemotherapy was introduced for the treatment of childhood leukaemia in the 1940s and has been incorporated into treatment regimes that previously relied on surgery or radiotherapy for other common childhood cancers. In the USA, seven out of ten children now receive their care in special paediatric cancer treatment centres.
But not in the developing world…
80% of children with cancer live in developing countries. They are often diagnosed too late or not diagnosed at all.
Without access to life-saving treatment, more than one in two of these children diagnosed with cancer will die.
Treating childhood cancer doesn't have to be expensive. By developing treatment regimes that take account of a country's medical facilities and providing proper training and advice to local doctors, we can make great progress on relatively limited funds.
The international community needs to recognise the plight of children with cancer as a priority.
HIV/AIDS remains a critical priority for the health of children in sub-Saharan Africa, but cancer is emerging as a major cause of childhood death in Asia, Central and South America, northwest Africa and the Middle East, where fewer children are now dying from preventable infectious diseases.
A coordinated strategy by the global cancer control community – one that combines innovative science and sound public health policies – can save a large proportion of the 90,000 young lives lost every year.
Sources "Annual Report to the Nation on the Status of Cancer, 1975-2001, with a Special Feature Regarding Survival", Cancer, vol 101, no 1, July 1, 2004.
Global Action Against Cancer (Geneva: UICC/WHO, updated edition 2005).
Ribeiro R.C. & Pui C-H. (2005), "Saving the Children - Improving Childhood Cancer Treatment in Developing Countries", New England Journal of Medicine, 352; 21: 2158-2160.
Steliarova-Foucher E., Stiller C. et al. (2004), "Geographical patterns and time trends of cancer incidence and survival among children and adolescents in Europe since the 1970s (the ACCIS project): an epidemiological study", The Lancet, 364: 2097-105.
Tanneberger S., Cavalli F., Pannuti F., eds., Cancer in Developing Countries: The Great Challenge for Oncology in the 21st Century (Munich: Zuckschwerdt, 2004).
Promoting a smoke-free environment for children
In the first global initiative of its kind, the International Union Against Cancer (UICC) and cancer-fighting organizations in every region will lead a year-long effort to promote smoke-free environments for children. "I love my smoke-free childhood" will launch on World Cancer Day, 4 February, with these messages for parents:
Avoid smoking at home or in a car
Caution children to stay away from second-hand smoke and keep children away from places that allow smoking
Teach children there is no safe level of second-hand smoke
Do not smoke while pregnant or in the vicinity of someone who is pregnant
Use a smoke-free childcare centre
If you are a smoker, ask your doctor what you can do to stop
Become a role model for your child - do not smoke
Protecting our children from second-hand smoke
To back these messages, UICC is publishing a 40-page expert report, "Protecting our children from second-hand smoke".
This expert report sets out the health consequences to children of exposure to environmental tobacco smoke and makes detailed recommendations on safeguarding children in homes and cars, schools, childcare facilities, and other public places. Authors include Dr Jonathan Samet, senior scientific editor of the 2004 and 2006 US Surgeon General's reports on smoking and health. Copies available on requestThis e-mail address is being protected from spam bots, you need JavaScript enabled to view it from UICC.
Today's children, tomorrow's world
"I love my smoke-free childhood" is the first full-year initiative in "Today's children, tomorrow's world", a five-year global focus on children in UICC's World Cancer Campaign, launched on World Cancer Day 2007.
The campaign presents simple steps parents can share with children to prevent cancer later in life: eating a balanced diet, learning about vaccines for virus-related liver and cervical cancers and avoiding over-exposure to the sun.
"Forty percent of cancers are preventable through healthy habits. The first step toward prevention is education, starting with parents and children. Every success story means fewer lives lost," says Isabel Mortara, UICC executive director.
"Tobacco-related cancers lead the list of preventable deaths and hundreds of thousands of people who have never smoked die each year from diseases caused by second-hand smoke. That's why this initiative is so important."
Tobacco causes one in five of all cancer cases worldwide and one in three in high-income countries. Tobacco killed more than five million people in 2005. If current trends continue, by 2030 tobacco will kill as many as 8.3 million people each year.
In addition to targeting individuals, the World Cancer Campaign encourages decision-makers to put cancer on the public agenda. A growing number of countries have passed 100% smoke-free legislation, banning smoking in all enclosed public places without exception.
"Countries with 100% smoke-free laws should be commended for their legacy to healthier families. In these nations the percentage of children exposed to second-hand smoke has decreased over time," says Dr Franco Cavalli, UICC president. "While this trend is encouraging, this approach alone will not protect children from second-hand smoke. That's why educating parents is so crucial."
Smoke-free symbol competition
On World Cancer Day, the UICC is launching a design competition for a logo signalling a "smoke-free" home or car. The competition is open to individuals, UICC members and creative agencies. The winning artwork will be announced on 5 May and awarded US $5,000. For further details contact JJ Divino, World Cancer Campaign coordinatorThis e-mail address is being protected from spam bots, you need JavaScript enabled to view it .
Tobacco control and cancer prevention: Resources for reporters
The International Union Against Cancer: Founded in 1933, the International Union Against Cancer (UICC) is the world's only truly global consortium of cancer-fighting organizations, with almost 300 members spanning Africa, the Americas, Asia-Pacific, Europe, and the Middle East. Located in Geneva, Switzerland, UICC has members in more than 90 countries.
World Cancer Congress 2008: The World Cancer Congress offers reporters access to the world's leaders in cancer control. The next Congress will convene in Geneva, 27-31 August. The meeting offers new research on topics such as tobacco control and cervical cancer vaccination, as well as ongoing evidence-based solutions to cancer control in every region.
Together, those two words strike fear in the hearts of parents everywhere.
But add a third word - prevention - and the message becomes one of hope, health and life stretching from youth through adulthood.
Prevention is the focus of "Today's children, tomorrow's world", the second phase of the World Cancer Campaign that will launch on World Cancer Day, 4 February 2007.
At the heart of the campaign will be messages to parents, politicians and health-care professionals. UICC and its member organizations will share information about simple lifestyle changes and cutting-edge vaccines that can prevent many forms of cancer.
"This campaign is about preventing cancer now and it is about the future," says Franco Cavalli. "By teaching today's children, we can give them a better, healthier world tomorrow."
Many people around the world believe that cancer is fate - just something that happens to them if they are unlucky. They believe that they have no control over their chances of developing a cancer.
In fact, more than one-third of all cancer cases worldwide – almost four million cases each year – can be prevented if we act on what we already know and apply that knowledge in our daily behaviour. Tobacco use, diet, nutrition and exercise, sun safety and vaccination against cancer-causing viruses all play a role in influencing cancer risk. Simple changes in lifestyle can be taken to reduce cancer risk.
The aim of the “Today’s children, tomorrow’s world” campaign is to scale up awareness of what we can do to prevent cancer and to change people’s behaviour in that light.
Healthy habits established early in life have a significant impact in later years. Behaviour is already formed before adolescence. The environment in which children grow up – at home, in school, and in the community – powerfully influences their behaviour later on, whether this regards tobacco use and exposure to second-hand smoke, diet and physical activity, or smart behaviour in the sun. Policymakers’ decisions about cancer vaccination at an early age determine how far children and young people will be protected against cancers of the liver or cervix.
For all these reasons, the “Today’s children, tomorrow’s world” campaign will focus on the young.
Parents have a key role in influencing healthy habits in their children. We need to help parents to understand the long-terms benefits of a healthy lifestyle and to engage them as partners in cancer prevention activities that start early in life.
From a prevention perspective, there is strong justification for focusing the campaign on four main cancer-causing factors: (1) tobacco and tobacco-free environments, (2) diet, alcohol and exercise, (3) preventing infections that may cause cancer, and (4) being sun smart. [1]
The campaign message globally consists of four key precepts:
- provide a smoke-free environment for children ("no smoking in homes")
- encourage an energy-balanced lifestyle (regular physical activity and low-fat diet, avoid obesity)
- learn the facts about vaccinations (HBV & HPV)
- teach your children to be sun-smart
In the course of this campaign, UICC, its member organizations and its partners throughout the world will engage in awareness-building, information-sharing, educational activities and community mobilization.
"My Child Matters"
In 2005, the International Union Against Cancer (UICC) launched its World Cancer Campaign, with an initial focus on childhood cancer under the theme "My child matters". Over the coming years, the campaign will address many aspects of the fight against cancer.
There is an urgent need to scale up awareness of the fight against cancer. Information, education and communication, especially with respect to prevention, early detection, diagnosis and treatment, need strategic focus in order to bring about socio-behavioural changes. In recent years, the fight against cancer has taken a back seat to other public health priorities such as HIV/AIDS, tuberculosis and malaria.
Each year, 7 million people die of cancer and 11 million new cases are diagnosed. Cancer claims twice as many lives worldwide as AIDS. In fact, more than 12% of all deaths every year are caused by cancer. That’s more than AIDS, tuberculosis, and malaria put together.
The UICC World Cancer Campaign is a response to the Charter of Paris adopted during the 2000 World Summit Against Cancer for the New Millennium. This calls for “an invincible alliance – between researchers, healthcare professionals, patients, governments, industry and media – to fight cancer and its greatest allies, which are fear, ignorance and complacency.”
No other international organisation has built on this momentum to coordinate activities and organise related annual events at the global level. Therefore, UICC, through its member organisations and partners, has launched the World Cancer Campaign, including the annual commemoration of World Cancer Day on 4 February. Specific campaigns will be planned along selected themes to highlight awareness of the cancer burden in participating countries and gather funds for cancer initiatives.
WHAT IS CANCER?
Cancer is a generic term for a group of more than 100 diseases that can affect any part of the body. Other terms used are malignant tumours and neoplasms. One defining feature of cancer is the rapid creation of abnormal cells which grow beyond their usual boundaries, and which can invade adjoining parts of the body and spread to other organs, a process referred to as metastasis. Metastases are the major cause of death from cancer.
FACTS ABOUT CANCER
Cancer is a leading cause of death worldwide. From a total of 58 million deaths worldwide in 2005, cancer accounts for 7.6 million (or 13%) of all deaths. The main types of cancer leading to overall cancer mortality are:
lung (1.3 million deaths/year);
Stomach (almost 1 million deaths/year);
Liver (662,000 deaths/year);
Colon (655,000 deaths/year) and
Breast (502,000 deaths/year).
More than 70% of all cancer deaths in 2005 occurred in low and middle income countries. Deaths from cancer in the world are projected to continue rising, with an estimated 9 million people dying from cancer in 2015 and 11.4 million dying in 2030.
The most frequent cancer types world wide are:
Among men (in order of number of global deaths): lung, stomach, liver, colorectal, oesophagus and prostate.
Among women (in order of number of global deaths): breast, lung, stomach, colorectal and cervical.
QUICK CANCER FACTS
40% of cancer can be prevented (by a healthy diet, physical activity and not using tobacco).
Tobacco use is the single largest preventable cause of cancer in the world. Tobacco use causes cancer of the lung, throat, mouth, pancreas, bladder, stomach, liver, kidney and other types; Environmental tobacco smoke (passive smoking) causes lung cancer.
One-fifth of cancers worldwide are due to chronic infections, mainly from hepatitis B viruses HBV (causing liver), human papilloma viruses HPV (causing cervix), Helicobacter pylori (causing stomach), schistosomes (causing bladder), the liver fluke (bile duct) and human immunodeficiency virus HIV (Kaposi sarcoma and lymphomas).
WHAT CAUSES CANCER?
Cancer occurs because of changes of the genes responsible for cell growth and repair. These changes are the result of the interaction between genetic host factors and external agents which can be categorized as:
physical carcinogens such as ultraviolet (UV) and ionizing radiation
chemical carcinogens such a asbestos and tobacco smoke
biological carcinogens such as infections by virus (Hepatitis B Virus and liver cancer, Human Papilloma Virus (HPV) and cervical cancer) and bacteria (Helicobater pylori and gastric cancer) and parasites (schistosomiasis and bladder cancer)
contamination of food by mycotoxins such as aflatoxins (products of Aspergillus fungi) causing liver cancer.
Tobacco use is the single most important risk factor for cancer and causes a large variety of cancer types such as lung, larynx, oesophagus, stomach, bladder, oral cavity and others . Although there are still some open questions, there is sufficient evidence that dietary factors also play an important role in causing cancer. This applies to obesity as a compound risk factor per se as well as to the composition of the diet such as lack of fruit and vegetables and high salt intake. Lack of physical activity has a distinct role as risk factor for cancer. There is solid evidence about alcohol causing several cancer types such as oesophagus, pharynx, larynx, liver, breast, and other cancer types.
HOW DOES CANCER DEVELOP?
Cancer arises from one single cell. The transformation from a normal cell into a tumour cell is a multistage process, typically a progression from a pre-cancerous lesion to malignant tumours. The development of cancer may be initiated by external agents and inherited genetic factors. Ageing is another fundamental factor for the development of cancer. The incidence of cancer rises dramatically with age, most likely due to risk accumulation over the life course combined with the tendency for cellular repair mechanisms to be less effective as a person grows older.
HOW CAN THE BURDEN OF CANCER BE REDUCED ?
The existing body of knowledge about the causes of cancer and about interventions to prevent and manage cancer is extensive. Cancer control is understood as public health actions which are aimed at translating this knowledge into practice. It includes the systematic and equitable implementation of evidence-based strategies for cancer prevention, early detection of cancer and management of patients with cancer.
Up to one third of the cancer burden could be reduced by implementing cancer preventing strategies which are aimed at reducing the exposure to cancer risk mainly by:
changes in tobacco and alcohol use, and dietary and physical activity patterns
immunization against HPV infection
the control of occupational hazards
reducing exposure to sunlight
Another third of the cancer burden could be cured if detected early and treated adequately.
Early detection of cancer is based on the observation that treatment is more effective when cancer is detected earlier. The aim is to detect the cancer when it is localized. There are two components of early detection programmes for cancer:
Education to promote early diagnosis by recognizing early signs of cancer such as: lumps, sores, persistent indigestion, persistent coughing, and bleeding from the body's orifices; and the importance of seeking prompt medical attention for these symptoms.
Screening is the identification by means of tests of people with early cancer or pre-cancer before signs are detectable. Screening tests are available for breast cancer (Mammography) and Cervical cancer (Cytology tests).
Treatment of cancer is aimed at curing, prolonging life and improving quality of life of patients with cancer. Some of the most common cancer types such as breast cancer, cervical cancer and colorectal cancer have a high cure rate when detected early and treated according to best evidence. The principal methods of treatment are surgery, radiotherapy and chemotherapy. Fundamental for adequate treatment is an accurate diagnosis by means of investigations involving imaging technology (ultrasound, endoscopy, radiography) and laboratory (pathology).
Relief from pain and other problems can be achieved in over 90% of all cancer patients by means of palliative care. Effective strategies exist for the provision of palliative care services for cancer patients and their families, even in low resource settings.
WHO'S STRATEGY FOR PREVENTION AND CONTROL OF CANCER
Following the adoption of a Cancer Prevention and Control Resolution at the 58th WHA on May 2005, WHO is developing the Global WHO Cancer Control Strategy. The Strategy aims at reducing the cancer burden and cancer risk factors as well as improving the quality of life of patients and their families worldwide by means of planning and implementing cancer prevention and control strategies. The cancer control strategy is integrated into the overall WHO chronic disease prevention and control framework of the Department of Chronic Diseases and Health Promotion. The cancer control strategy is based on the following guiding principles:
People-centered: the ultimate goal is to improve the well-being of the people, communities, families and individuals.
Equity: the strategy focuses on the needs of low-and middle-income countries and of vulnerable and marginalized populations.
Ownership: the strategy guarantees the strong commitment and active involvement of key stakeholders in each stage of the decision-making process and implementation.
Partnership and multisectoral approach: the strategy ensures the wide participation and collaboration of all sectors: public and private,
Sustainability: the strategy emphasizes the need for national governments and partners collectively strive for financial and technical self-reliance, to ensure the continuation of benefits from established programmes after major assistance has been completed.
Integration: the strategy is embedded within the overall framework of chronic disease prevention and control and other related areas (such as environmental health, communicable diseases, etc).
Stepwise approach: the strategy considers the implementation of interventions, at a national or sub-national level, in a sequential manner.
Evidence-based: the strategy is based on research results, programme evaluation, economic analysis, best practice, and lessons from countries.
WHO, in cooperation with its cancer research agency, the International Agency for Research in Cancer (IARC), and other organizations of the United Nations system, will provide the leadership for international cancer prevention and control and will develop the following actions:
Advocacy and political commitment for cancer prevention and control
Generation of new knowledge and dissemination and diffusion of existing knowledge to facilitate the application and programme delivery of evidence-based approaches to cancer control
Development of standards and tools for guiding effective cancer control planning and implementation of evidence-interventions for prevention, early detection, treatment and palliative care
Facilitating the development of multisectoral networks of cancer control partners at the global, regional and national levels
Building capacity for developing and implementing effective policies and programmes and strengthening health systems
Provision of technical assistance for the rapid, effective and efficient translation of evidence-based cancer control interventions into public health policies and programmes in developing countries.
Global trends in cancer control can be significantly improved through sustained strategies of primary prevention and early detection. Even with today’s sophisticated communications technology, most people are not aware that most cancers are preventable. In low-and middle-income countries, 80% to 90% of cancer patients already suffer from advanced and incurable cancers at the time of diagnosis. Screening, early detection and lifestyle changes are critical to avoid this trend from continuing. From a global perspective, there is strong justification for focusing primary cancer education and prevention activities on four main cancer-causing factors. These are: (1) avoid tobacco, (2) avoid obesity/adopt healthy diets (3) learn the facts about viruses, infections and new vaccinations (4) be smart in the sun.
Advocacy and health education are fundamental especially in driving behavioural changes among young people where we can make a meaningful difference in reducing the burden of preventable cancers. The key to cancer control is prevention and the time to act is now.
Psychosocial Effects of Cancer
Cancer is a lonely journey. While advances in treatment have improved the physical experience, people living with cancer continue to suffer emotional pain and loss of self-esteem and self-confidence. These individuals often see their benefits, rights and social status snatched away overnight – a situation that often remains even after treatment.